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  #1  
Old Mon Oct 28, 2013, 08:39 PM
triumphe64 triumphe64 is offline
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Location: Dallas, Texas
Posts: 440
Houston Hope, Steps & A Cure, March 22, 2014

The first Houston walk will be March 22, 2014.
Details will follow soon.
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Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #2  
Old Tue Jan 14, 2014, 07:39 PM
triumphe64 triumphe64 is offline
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The web page is up for the March 22 Houston walk is up.

Hotel registration for a discount must be made by March 7.

https://friendraising.towercare.com/...dCode=Q8X7XYXR
__________________
Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #3  
Old Mon Feb 3, 2014, 07:04 PM
Marrowforums Marrowforums is offline
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Hope, Steps & A Cure Houston 2014 - Details

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Hope, Steps & A Cure Houston is a fun and festive walk to raise community awareness about bone marrow failure diseases while raising much needed funds for the Aplastic Anemia & MDS International Foundation (AA&MDSIF) to provide programs and services to help patients and families.

The inaugural walk will take place on Saturday, March 22, 2014 at Lynn Eusan Park on the campus of the University of Houston, in collaboration with the university's annual Frontier Fiesta. Marrowforums members are invited to participate in the events, sponsor a participant, or make a general donation. Fundraising has already begun!

Hope, Steps & A Cure Houston will be a day of fun, connecting with fellow patients and families, hearing inspirational speakers, and three events you can register for:

1. The Hope, Steps & A Cure Walk
Walk with your family and your support team, at your own pace.

Registration: click here

You can join a team as you register or afterwards.

Registration options include the Frontier Fiesta wristband for adults or children. The adult wristband includes lunch and two variety show entry tickets. The wristband for children includes lunch and unlimited rides and activities.
2. Frontier Fiesta 5K for the Brave
A competitive 5K race.

Registration: click here
3. Brave Little Soles
A Kid's Fun Run.

Participation is free but a donation to the AA&MDSIF is welcomed. Registration will be on-site.
Where:
Lynn Eusan Park
Google map
University of Houston campus map
When:
Saturday, March 22, 2014

7:30am: Walk and Run registration and check-in
9:00am: Start of 5K for the Brave
9:15am: Start of Hope, Steps & A Cure Walk
9:30am: Start of Brave Little Soles registration
10:00am: Start of Brave Little Soles Kid's Run
10:30am: Awards & Moment of Remembrance
11:00am - 1:00pm: Lunch
11:00am - 9:00pm: Frontier Fiesta Family Fun Days, variety shows, and entertainment
Hotel for out-of-towners:
Crowne Plaza-Houston River Oaks (Google map)
2712 Southwest Freeway
Houston, TX 77098

Phone: 877-834-3613

Registration: click here or phone the hotel and use the "Hope, Steps, Cure" code "HOP".

Event rate: $99 for the nights of March 21 and March 22

Registration deadline: Friday, March 7, 2014
For further details:
Event page

Signup FAQ

For help with registration, contact Bill Hamm by email or at 512-301-5029.

If you plan to attend Hope, Steps & A Cure Houston, post in this thread to let other attendees know to look for you!

After the event, let us know what you thought of it.
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  #4  
Old Tue Feb 4, 2014, 12:27 AM
triumphe64 triumphe64 is offline
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I will be there.
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Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #5  
Old Sun Feb 9, 2014, 11:11 PM
Heather8773 Heather8773 is offline
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Location: Houston, TX
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All signed up to run!!! If Dr clears my husband wants to volunteer
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #6  
Old Mon Feb 10, 2014, 02:04 AM
triumphe64 triumphe64 is offline
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Quote:
Originally Posted by Heather8773 View Post
All signed up to run!!! If Dr clears my husband wants to volunteer
You were the first runner to sign up. They said you would get Bib #1. I hope that is so. I'll pass the word along about your husband.
__________________
Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #7  
Old Mon Feb 10, 2014, 09:20 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
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Awesome!!! I have 3 others signing up Ill share on my FB again so hopefully more will!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #8  
Old Mon Mar 10, 2014, 09:49 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 440
There is still time to sign up.
__________________
Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #9  
Old Sun Mar 23, 2014, 11:50 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
So this was my first 5k and first hope steps and a cure (I volunteered at the bethematch walk run) if you haven't been I strongly reccomend! It was such an amazing experience of comradery, true hope and the most determined group of people I have ever met. I saw a woman about to have a transplant running!
Anyway weather it's volunteering, running, walking, or even signing up the littles for tot trot its a fun way to give back to an organization that has given a lot to many of us
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #10  
Old Mon Oct 13, 2014, 11:50 PM
Marrowforums Marrowforums is offline
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Final tallies:
Over 310 walkers and runners

15 Walk Teams

Over $39,000 raised in a single day!
Congratulations to the organizing committee and the many people who helped or attended.
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  #11  
Old Tue Oct 14, 2014, 09:43 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 440
The 2015 event will be on March 28.
If anyone wants to help, send me a PM.
__________________
Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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