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  #1  
Old Wed Jul 4, 2012, 01:18 PM
Anne Yeomans Anne Yeomans is offline
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Join Date: Dec 2011
Location: Lakeworth, Florida
Posts: 39
BMT end of aug beg Sept

Hey Everyone:
Got a call from Moffitt on monday, they have tentively scheduled BMT, for the end of Aug. beginning of Sept. They found a 9 point match. It's a really good thing. tThey took me off of the revlimid, making me to sick and not any benefit to my hmg. At transfusions every 7-11days. Back on 7dy Vidaza cycle. Hope I can get some weight back on. Looks like things are beginning to role. Will know date once they contact donor, hopefully end of this week beginning of next week. thank for all the prayers.
Hope everyone is doing fine.

Anneg
God Bless
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  #2  
Old Wed Jul 4, 2012, 07:44 PM
Neil Cuadra Neil Cuadra is offline
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Congratulations, Anne.

How long did they search before finding you a donor?
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  #3  
Old Wed Jul 4, 2012, 08:54 PM
Al's Wife Al's Wife is offline
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God bless you, Anne, and good luck.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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  #4  
Old Thu Jul 5, 2012, 11:48 AM
Anne Yeomans Anne Yeomans is offline
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Smile aug/sept

Hey Neil:

Not very long about 10wks. I was so surprised, thought with the native american, they would have a hard time. Here we go. thanks for all the support.

Anneg
God Bless
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  #5  
Old Thu Jul 5, 2012, 11:49 AM
Anne Yeomans Anne Yeomans is offline
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Smile aug/sept

Hey Linda,

Thanks, Hope all is well.

Anneg
God Bless
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  #6  
Old Thu Jul 5, 2012, 12:54 PM
squirrellypoo squirrellypoo is offline
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Hi Anne.

That's great news! Try not to get too excited about a date when you get one - I pinned all my hopes on one date, only to have it delayed by a month at the last second (literally the day before), and I wish someone had told me that this is normal and it happens fairly regularly! Every day feels like an eternity when you're struggling to hold it together and wait for your life to change, just know that it might not be the first date you hear.

good luck! melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #7  
Old Wed Jul 11, 2012, 09:08 PM
Lori Patrick Lori Patrick is offline
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Anne, Ditto to what squirrlypoo said. But, it is a very good thing that they found a donor! Prayers to you.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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  #8  
Old Mon Aug 6, 2012, 12:17 AM
ConfusedSpouseInFlorida ConfusedSpouseInFlorida is offline
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Hi, Anne -

Look for me at the "guest" areas at the Moffitt BMT wing: my name is Laura. My husband is scheduled for a SCT on August 31 (admitting at Moffitt on August 26 to start chemo prior to the SCT).

Laura
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  #9  
Old Wed Aug 8, 2012, 09:11 AM
milliken2 milliken2 is offline
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Hope All Goes Well

Anne;
I hope all goes well for your BMT. My thoughts and prayers will be with you for sure. Keep us infomed about any new aspects. Take Care.

((((HUGS))))
Beth
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  #10  
Old Fri Aug 17, 2012, 09:08 AM
ramey2148 ramey2148 is offline
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Thumbs up Good luck

Ann,
Good luck with transplant and just stay positive. My name is Bob and had a 9-10 match donation 08-31-10 at 32 yrs. old. Just a little advice is to make sure u walk or do some sort of little exercise and keep your mouth clean and stay positive and you will be fine. I am Irish, Italian, german and my donor is from Isreal. Imagine that? He just reached out to make contact with me which is pretty exciting.
Good luck,
Bob
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  #11  
Old Fri Aug 17, 2012, 02:48 PM
rkp rkp is offline
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Quote:
Originally Posted by ramey2148 View Post
I am Irish, Italian, german and my donor is from Isreal. Imagine that? He just reached out to make contact with me which is pretty exciting.
Good luck,
Bob
That is simply amazing.

Anne, good luck with the BMT.Hope everything goes well.
Take care,
-RP
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  #12  
Old Fri Aug 17, 2012, 08:17 PM
donna j. donna j. is offline
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Location: long island, new york
Posts: 110
Hi Anne,

Transplant ideas.

Even though I a plethora of electronic devices, smart phone, IPod, and laptop, kindle, it was the digitial picture frame which ran photos of my family twenty four-seven which I really relied on when I woke at night, or felt tired or nauseus during the day. I could just lie there and see pictures of my grandkids at different ages and stages. And the nurses love to watch and connect who you are outside of the hospital. If you have one or ask someone to put together a compliation, friends, family whatever.

I also only watched comedies on TV.

"Psych" being one of my favorites.

Also ask about all the services available while there: bike, massage, physical therapy, social worker, ministry. Take advantage while recouperating. They don't always tell you these services are available and they certainly help.

The 3 line cathata(spell) into my jugular vein below my neck was wonderful as had been reported. The nurses come in at all hours and change infusions, and best of all the 5am daily draw of blood samples can happen while you are still asleep.

Best
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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  #13  
Old Wed Aug 22, 2012, 11:37 PM
mausmish mausmish is offline
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Congratulations on finding a donor and best wishes on your transplant, Anne! I am 20 months post bmt and thriving :-)
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #14  
Old Mon Sep 10, 2012, 01:00 PM
pankajg pankajg is offline
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Join Date: Sep 2012
Location: Delhi, India
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Congrats Anne for finding the match.
I am new user, belong to india. My brother in law is suffering from MDS and we are planning the treatment in Pittsburg, USA.

Can u please give some idea of cost of the BMT and also the helpline number from which we can get the information regarding the treatment....Please help me in this ...
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