Home Forums |
#1
|
|||
|
|||
My BMT
Is it just me, or are there other people who have very practical struggles leading up to transplant... ?
My donor is from overseas and is currently being tested to make sure they are a really, really good match. (note that I only have one match) And everything from my end seems to be put on hold because I don't have enough support. God help me. I guess my BMT isn't urgent right at this moment, but it is so difficult to have your life on hold! My Doc told me to not go out and get work as yet, because we hope to at least start transplant within 6 months. Maybe I should look at doing some study. The only difficulty is that I have limited support. And I may need to move back to Brisbane, where I just moved from, to get support support from my Mum (who also caring for my Dad)...... but she is all I have. What a mess. Maybe this is all a bad dream, and I'll wake up tomorrow and don't need a transplant. Sorry for all the drama. Just want to forget all about this.
__________________
Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections. |
#2
|
|||
|
|||
Jules, I just re-read your post and it sounds quite negative!
I think you need to work on being a bit more positive about this whole process in your life at the moment, or you will end up alone through this. Work on the things that mean most to you at this point in time. And forget about those things that overwhelm you, until they need to be addressed. One thing at a time.
__________________
Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections. |
Thread Tools | Search this Thread |
|
|
Similar Threads | ||||
Thread | Thread Starter | Forum | Replies | Last Post |
Double transplant - BMT and kidney (yes I might very well be crazy) | Ninanna | Tell Your Story | 7 | Tue Sep 9, 2014 08:24 AM |
ATG or BMT | Fana | AA | 12 | Thu Aug 28, 2014 01:47 AM |
Questions to ASK at BMT Consult | NLJabbari | Transplants | 4 | Tue Oct 29, 2013 10:51 PM |
?WHY?- low platelets STILL > 1 yr post BMT | MGirl | Transplants | 2 | Sun Mar 25, 2012 01:46 AM |
Update on BMT of 14th Feb 2007 | Nina van Nunen | Transplants | 4 | Mon May 28, 2007 04:59 PM |