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Transplants Bone marrow and stem cell transplantation

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  #1  
Old Tue Sep 13, 2016, 08:14 AM
lisa3112 lisa3112 is offline
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Smile Good news!

Hi, just wanted to put some good news out here. As my signature says I had AML. I also had runx1 and trisomy 6. Post transplant the trisomy 6 went but runx1 remained in a few cells... my consultant was discussing DLI with me. Well as of my latest bone marrow biopsy in August BOTH are gone! And I am complete donor :-)
Yay for small miracles :-)
Lisa
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old!
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  #2  
Old Tue Sep 13, 2016, 11:39 AM
Neil Cuadra Neil Cuadra is offline
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That's fantastic, Lisa! Congratulations! Your family must be thrilled, and your baby doesn't know how lucky he or she is.

Your donor must have been a great match. What do you know about your donor?

How's the cyclosporine reduction going?
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  #3  
Old Tue Sep 13, 2016, 10:29 PM
Cheryl C Cheryl C is offline
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Congratulations Lisa! May this success continue as you taper off the drugs.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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Old Tue Sep 13, 2016, 11:03 PM
Hopeful Hopeful is offline
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Smile

Great news Lisa!
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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Old Wed Sep 14, 2016, 02:18 AM
lisa3112 lisa3112 is offline
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Thanks everyone :-) so greatful!
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old!
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  #6  
Old Wed Sep 14, 2016, 06:47 AM
PaulS PaulS is offline
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That's great news Lisa! Stay strong and keep getting better.

Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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