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#26
Thu Dec 4, 2014, 01:54 AM
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Sue,
Just wanted to send you and Amy more best wishes, the best treatment options available, and the wisdom to choose the best for Amy.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body. 
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#28
Thu Dec 4, 2014, 02:51 PM
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Just wanted to let you know that I am thinking of you both and wishing all the best for both of you! I'm sorry that the transplant hasn't progressed as you had hoped but am so glad that Amy is showing everyone how strong and special she is! I hope you can be in the comfort of your own home for the holidays and have some time to relax and recuperate! Sending hugs to you both!
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#29
Fri Dec 5, 2014, 04:41 AM
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Thinking of you both & hoping you get some more days off soon and make it home for the holidays! Stay strong & all the best for Tuesday.
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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