Transplant ?

[Bhutt]

Does anyone feel the same after a transplant as they did before it?

Thanks Blair

[Cam]

What do you mean by that? I am waiting to get off all my meds then I may be able to answer that. I have good days and bad. I am getting more and more better days though...

[Bhutt]

Will your quality of life be as good after transplant as it was before mds. I know it will be at least a year before anyone would know.

Thanks Blair

[sbk007]

I think that's the idea behind doing it in the first place. That's the goal of your team. It might benefit you to ask the transplant Dr. as many questions as you can such as this one. How many of these has this Dr done and what they expect your results should be. I think in your case having a sister that's a perfect match puts you at favorable odds from the get go. Good luck. Ask the Dr's as many questions as you can think of. Any concern you might have.

[MDSPerth]

Hopefully the result is that the person receiving the transplant is around for many many years, instead of just months and has a good quality of life.

I can tell you now though, if you decide to go ahead with the transplant you will need to face the challenge head on with an absolutely positive nature as will your caregiver.

[kris]

Rick has once again the energy he had prior to MDS and transplant has been the best thing for him. A cure. He is now 18 months post transplant!
He is still on sirolimus, his meds have been decreased very very slowly. He has had almost no GVHD. Life is good. Rick was also blessed to have a sister who was a 10/10 match and a care team that is awesome.

[squirrellypoo]

Everyone is different, but you can get lucky and be fitter and stronger after the transplant than you were before. I'm 3.5 years post transplant now and even though I was a runner before, I'm far, far fitter now. The longest I'd ever run pre-transplant was 10km, and now I'm running my second marathon on Sunday (eep!). I think going through the transplant has also improved my pain tolerance (obviously), patience, and empathy. I like to think it's made me a better person all around, not just a better runner.