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  #1  
Old Fri Feb 14, 2020, 10:24 PM
rar rar is offline
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Advice on appearing before Board of Veterans' Appeals

I filed a disability claim. I was a company armour in the US Army in 1961. I was exposed to benzene as part of my job. In 2014 I was diagnosed with Myelodyaplastic Syndrome reactive anemia with excess blasts II (MDS). I claim that benzene exposure is at least as likely than not the cause of my MDS. I have 2 nexus letters from doctors who agree.

The Army is short on records. Their toxic exposure program was in need of an overhaul. The only thing that attempts to refute the denial is the two nexus letters that the VA already has. I received the denial in 2016. I filed a NOD. I am on the VA BVA docket in a couple of months. Other than the nexus letters I have noting to refute the VA denial.

I am undecided on a lawyer or the VSO representative. I think my case is weak, what do you think? What do you think my odds of the BVA reversing in my case? What can I do to ensure a favorable outcome?

Ray

VA denial
Issue Contention
myelodysplastic syndrome (MDS) (due to benzene exposure)

Explanation
Service connection for myelodysplastic syndrome (MDS) (due to benzene exposure) is denied since this condition neither occurred in nor was caused by service.

The evidence does not show an event, disease or injury in service. Your service treatment records do not contain complaints, treatment, or diagnosis for this condition. There was no continuity of symptoms from service to the present. Myelodysplastic syndrome is not considered a presumptive condition at this time, therefore we are unable to service connect it using the evidence available in your claims.
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  #2  
Old Wed Feb 19, 2020, 05:36 PM
DanL DanL is offline
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Ray,

I know that I have seen this come up in the past but was tied to agent orange, and the facts that were used that since the military acknowledged the role of benzene in causing MDS, and Agent Orange had benzene rings in it, then Agent Orange exposure should be considered an event.

I think that you have even odds of getting it approved due to your benzene exposure during service. I am wondering if the VFW might have some resources that you can use to connect you with cases that have been won over the years at your specific location. I am not sure about the cost/benefit and risk/reward components to hiring an attorney, but you might find somebody that specializes in these claims that can work for a reasonable fee, and generally i think your odds increase when consulting with an attorney.

Good luck at the review.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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  #3  
Old Thu Feb 20, 2020, 05:50 PM
GoodDay5150 GoodDay5150 is offline
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Hi Ray. I also live in Denver and I am treated by CBCI at PSL. I am not a veteran, but I read extensively in respect to bone marrow failure diseases. From what I can tell there is research showing an increased risk of MDS due to benzene exposure. As you know, there is an increased risk of MDS due to age and being treated for other malignancies. In respect to PNH, Dr Ilene Weitz at USC told me at a medical conf/ patient meet-up that her research has shown a higher incidence of PNH in places such as Texas near oil and gas drilling/ production. You are also aware that MDS, PNH, and AA are rare diseases, so I am guessing that the VA has somewhat limited experience in claims related to these diseases. (Just a guess) Please let us know your outcome.


Mario
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MARIO, 46, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD.
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  #4  
Old Tue May 5, 2020, 11:05 PM
rar rar is offline
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I had my hearing today. The judge in Washington and I never left my bedroom. The hearing lasted 12 minutes. I have strong nexus letters and showed that 2 of the bases I served on were EPA super fund sites The VSO thought I would probably win. It will take a month or so to hear the results. I am not as optimistic as the VSO.
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  #5  
Old Wed May 6, 2020, 08:29 PM
Mer Mer is offline
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Quote:
Originally Posted by rar View Post
I had my hearing today. The judge in Washington and I never left my bedroom. The hearing lasted 12 minutes. I have strong nexus letters and showed that 2 of the bases I served on were EPA super fund sites The VSO thought I would probably win. It will take a month or so to hear the results. I am not as optimistic as the VSO.
Ray, be optimistic...hoping you will win. Keep us posted.
Mer
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Mer, 77 yo f, patient; diagnosed MDS RAEB2, 12% blasts in Oct. 2019, currently on Vidaza, Retacrit, 2 completed tx, 3rd infusion at 50% due to low numbers at nadir, on prophylactic Bactrim for 0 neutrophils, Dx due to itching, monthly transfusions Nov,Dec. Feb #s at normal except for hg at 9.6...!
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  #6  
Old Sat Jul 18, 2020, 05:28 PM
rar rar is offline
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Join Date: Mar 2014
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I think I received a decision from the VA "remanded (leuikema service connection)

I claim that while in service I was exposed to toxic chemicals that altered my genes many years after exposure. Hence there is no records while I was in service. VA maintains there is no proof of service connection. I can not produce what does not exist.

Meanwhile my GVHD gets worse. Last appointment oncologist told me that my immune suppression meds side effects may be part of the problem. I am tappering them. His last option is jakafi, but not hopeful of success. He has no ideas past that. I am getting a second opinion.

Suggestions and prayers welcome.

Ray
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  #7  
Old Mon Jul 20, 2020, 08:10 AM
Meri T. Meri T. is offline
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Ray, you have my prayers.

I heard that Jakafi is good for cgvhd. Hope it works on you.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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