Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Jun 4, 2015, 04:40 PM
HughHC HughHC is offline
Member
 
Join Date: Sep 2011
Location: Lewes, De, USA
Posts: 18
Low Risk MDS

In 2002 at my annual physical three cytopenias were evident. They were not substanially out of the normal range and my physician merely stated that we neded to watch these symptoms. The following year I chose to have my blood work done at my local hospital. I went in the morning and the lab tech that I performed the draw and did the tests had apparently been doing some heavy partying the previous evening. My results were all well within the normal range.

All of the following years since I have had my lab work done in conjunction with my annual visit to my hematologist. The numbers have all (WBC< Hemo, Platelets, RBC) been below the normal range. The numbers were not alarming to my MDs but I wanted to know for certain what was going on. At this point I was 73 yrs old. They did perform a BMB and I was still without a confirmation as to MDS.

I have since moved to FL and connected with Moffitt. My numbers began to drop further and another BMB was undertaken and I have now been formally inducted into the club. I am considered as low risk MDS, whatever that means. I am planning to attend the November conference in Tampa to learn as much as I possibly can
Reply With Quote
  #2  
Old Thu Jun 4, 2015, 05:22 PM
Data Data is offline
Member
 
Join Date: Sep 2014
Location: Florida
Posts: 245
Hugh,
Welcome to the club. Sorry you have to be here. I am also being seen at Moffitt by Dr. Komrojki. Who are you seeing. I am signed up for the conference in November.

Good luck

Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
Reply With Quote
  #3  
Old Thu Jun 4, 2015, 05:46 PM
HughHC HughHC is offline
Member
 
Join Date: Sep 2011
Location: Lewes, De, USA
Posts: 18
Low Risk MDS

Data

I am seeing Dr. Sweet. That sounds ironic as I clearly do not see anything sweet about this matter. She is very professional as well as being very knowledgeable.

Previously I was treated at Johns Hopkins when I lived in DE and they spoke highly of Moffitt.

I have to say that I am pleased with the level of oprofessionalism that I see at Moffitt.

I am living in Venice but perhaps we will bump into each other at the Conference.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS Low Risk majorindy MDS 22 Wed Oct 17, 2018 02:08 AM
Low risk MDS with declining numbers PaulS MDS 30 Mon May 25, 2015 11:26 AM
Under 60 and Have Low Risk MDS? Read this. Greg H Drugs and Drug Treatments 5 Sun Sep 18, 2011 02:58 PM
The lower risk MDS patient at risk of rapid progression akita MDS 0 Mon Dec 27, 2010 04:28 AM


All times are GMT -4. The time now is 08:07 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org