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MDS Myelodysplastic syndromes

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Old Thu Aug 26, 2010, 10:51 PM
JackP JackP is offline
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Location: Tulsa, Oklahoma
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Tulsa, Oklahoma

The VA discovered that I had MDS in April of this year. If you are located in Oklahoma would like to hear from you and what your experiences have been. To date I can find very little in the state.
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JackP diagnosed MDS in 2010
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Old Thu Aug 26, 2010, 10:58 PM
Debbie W Debbie W is offline
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Jack

Not from Oklahoma, but MD Anderson in Texas might be the closest to you. Maybe they will review the BMB slides?

http://www.marrowforums.org/maps/treatment_centers.html
http://www.marrowforums.org/resource...nters_by_state
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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