Home Forums |
|
News and Events News related to bone marrow failure diseases |
|
Thread Tools | Search this Thread |
#1
|
|||
|
|||
New website for the PNH Research and Support Foundation
The PNH Research and Support Foundation, which funds research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH), has moved its website from www.pnhfoundation.org to pnh.aamds.org, now sharing the aamds.org domain with its strategic partner the Aplastic Anemia & MDS International Foundation. They also share the AA&MDSIF's Peer Support Network.
In additional to funding research, the PNH Research and Support Foundation has provided needy PNH patients with funding for disease-related expenses not covered by insurance, including seeing a specialist. You can contact the PNH Research and Support Foundation at 888-582-9993 or info@pnhfoundation.org. |
Thread Tools | Search this Thread |
|
|
Similar Threads | ||||
Thread | Thread Starter | Forum | Replies | Last Post |
Raise awareness on MDS and support research to help our loved ones affected | Wife of Diver Down | MDS | 3 | Tue Mar 1, 2016 02:34 PM |
8th Annual Walk for PNH in New York, September 22, 2013 | Marrowforums | News and Events | 0 | Sat Aug 10, 2013 12:16 PM |
NORD to Hold Six PNH Patient and Family Meetings in 2013 | Marrowforums | News and Events | 0 | Thu May 2, 2013 11:44 AM |
Fourth Annual Walk for PNH in New York City | Marrowforums | News and Events | 0 | Fri Oct 2, 2009 12:32 AM |