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#1
Tue Dec 18, 2012, 09:22 PM
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Day Plus 12 We have engraftment...
It has been a a while since I posted. Internet can be spotty and I am trying to keep up some work to keep inccome coming in so it takes precident. I have had mouth sores for the last 3 days but is ok. They tell me to go home I have to eat so I eat, I just grimace when I swallow. I have tried to stay off pain pills because all they do is make me sleep. But today after 20 days in isolation I was able to leave and walk the halls, I walked a mile and really was scared to come back in.. I also got to lose the chest monitor I have warn since I got here so that will help me sleep better. I lost my hair two days ago when it started coming out in clumps so I shaved it to the scalp from the buzz cut I came in with and my goatee. It has been a long time since I have been clean shaven. LOL My next goal is to walk out the front door of this place and see my boys not through skype but where I can wrap my arms around them and hug them.... Thanks for all the kind words...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012 
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#2
Tue Dec 18, 2012, 09:45 PM
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Cam,
Sorry to hear about the mouth sores and the pain when eating. It'll all go away, and let's hope soon. Walking the halls may get a little boring but it's a big step forward, no pun intended. My wife's transplant ward had a circular pathway through the halls and she walked that circle endlessly with her IV pole. Time to update your forum signature!
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#4
Wed Dec 19, 2012, 09:19 PM
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Quote:
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K, daughter and caregiver of Em - age 64 dx Oct 2012 with RAEB MDS Intermediate risk. BMT on 3/22/13.
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#5
Wed Dec 19, 2012, 09:32 PM
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Gosh, things seem to be moving along very well so far for you Cam. Enjoy your Christmas.
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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#6
Sat Dec 22, 2012, 09:19 PM
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Cam;
That's great news - and I wish you and your family a very Merry Christmas. Congratulatons to all of you. Beth
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS  . and I can't help the one I love the most.
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#7
Sun Dec 23, 2012, 11:19 PM
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GREAT NEWS Cam!!! I remember when I came home from my lengthy induction. It was Thanksgiving. It was a great feeling to be home! Merry Christmas to you and your family. With prayers for you, Lori
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#8
Wed Dec 26, 2012, 09:31 PM
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I made it out 16 days post transplant. They said I set the record for an Allo transplant at their facility.
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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#9
Thu Dec 27, 2012, 10:45 AM
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Good for you! Hopefully you had a wonderful time with your family. Remember to NOT overdo it. Prayers for you and your family.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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