Revlimid and side effects

[Mary Lee]

Have del 5 MDS and need to start on revlimid sooner than I hoped. Wondering about others who have had it and how they have done. Only keep finding old posts. Any help would be appreciated

[bailie]

I had three cycles of Revlimid. Zero side effects.

[Lifeguard]

Mary Lee,

I've been on Revlimid for four years for Del 5q, and still have minor side effects such as nausea, diahorrea and fatigue. My Hb and white cell counts were affected at dx, but now I only have a problem with neutrophils (0.8 - 1.3) I also have a low platelet count but this is a side effect of taking Revlimid. I started Revlimid when I needed blood transfusions and my blast count increased.

My specialist is currently concerned with my increased bouts of diahorrea and I see him today to see what we can do to fix it.

It does take a few cycles to work, but you'll be feeling much better as your counts increase.

Cheers
Rachael

[Mary Lee]

Thanks for responding. Hope you have good news from you Dr. about the diarrhea.

[Jo w]

I am a candidate for this drug. My chemo has caused bowel abnormalities and I find that Align helps restore the natural probiotics that are damaged by the chemo.