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#1
Fri Nov 15, 2013, 06:02 PM
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Documentary
Hi everybody,
It's been awhile since I've posted. I'm doing great and am back at work! In fact…I am producing/directing a documentary on AA patients heading towards a BMT. If you would be interested in participating please PM me. My life's purpose is awareness and my hope is this film will bring people to the registry. Thanks for your time! Ken
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Husband; Father of 2;Diagnosed with vsAA 8/25/11; hATG 9/6/11; 12/12 MUD BMT 3/23/12; Follow my journey at https://www.facebook.com/MyNewBirthday San Antonio TX 
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#2
Fri Nov 15, 2013, 06:24 PM
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This will bring awareness to both AA and the details of transplants. Be sure to cover the donor experience.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#3
Fri Nov 15, 2013, 08:47 PM
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Quote:
__________________
Husband; Father of 2;Diagnosed with vsAA 8/25/11; hATG 9/6/11; 12/12 MUD BMT 3/23/12; Follow my journey at https://www.facebook.com/MyNewBirthday San Antonio TX
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#4
Fri Nov 22, 2013, 06:31 PM
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Still Looking
I'm still looking for folks facing a BMT interested in having their story told. Let me know if you would be interested. Thanks!
__________________
Husband; Father of 2;Diagnosed with vsAA 8/25/11; hATG 9/6/11; 12/12 MUD BMT 3/23/12; Follow my journey at https://www.facebook.com/MyNewBirthday San Antonio TX
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