Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Dec 4, 2016, 12:10 PM
julieme julieme is offline
Member
 
Join Date: Dec 2016
Location: Monona
Posts: 13
haplo progress - husband

Hi all,
New here wondering what to expect. If he comes home in 1-2 weeks. please share. Here is the history


Just heard that Craig's haplo has kicked in at day 19, third day of white blood cell doubling number is 600 or 0,6. He had aml, was transplanted at cr1 with son's marrow.
Had the ceflox<sp> prophylaxis a few days after transplant. No evidence gvhd.
Reply With Quote
  #2  
Old Sun Dec 4, 2016, 02:27 PM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
So many memories. There will be differently feeling days. Patience is the key. Rather than expecting improvements every day, it helped me to see improvements every week or month. Don't try to do too much too fast. Be aware of any changes in feelings. We wish you the best. There is considerable information on this forum in the archives about those first few days.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.

Last edited by bailie : Sun Dec 4, 2016 at 02:40 PM.
Reply With Quote
  #3  
Old Sun Dec 4, 2016, 04:06 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,358
julienne,

I can offer my advice too.

The transplant team will provide you with detailed discharge instructions when your husband is released, so read them carefully.

Your husband will probably be fairly tired, and as bailie points out there will very likely be ups and downs from day to day.

You may need to return to the treatment center on occasion, not just for followup appointments but because you need a symptom evaluated or treated. My wife and I made many impromptu trips to the care center after her transplant, but in the end she came out of it fine. Don't panic when some extra attention is needed, and don't be shy about asking for the help.

Don't worry about your husband's appetite or nutrition at first. He'll eat what he can when he can, as his strength and health improve. He should certainly stay hydrated.

Your husband's risk of infection may still be a concern, even if his white count is near normal. Having friends and family and pets and visitors can be a psychological boost, and make life closer to normal again, but you may need to balance that with a need to keep him away from germs and to let him get enough rest.
Reply With Quote
  #4  
Old Fri Dec 9, 2016, 12:31 AM
julieme julieme is offline
Member
 
Join Date: Dec 2016
Location: Monona
Posts: 13
Update

Hi,
Day 23 after transplant. Just stopped growth facto injections. yesterday wbc 1.0 Neutrophils 890, platelets 4, rbc 8... today wbc 0.9, neutrophils 480, platelets 6 rbc 8.2 -- no transfusions for two days...Dr says this is good. My question why did neutophils and wbc go down? or are there normally ups and downs around this time
Reply With Quote
  #5  
Old Fri Dec 9, 2016, 06:08 PM
sstewart09 sstewart09 is offline
Member
 
Join Date: Feb 2013
Posts: 57
Fluctuations in counts are totally normal this early
__________________
Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
Reply With Quote
  #6  
Old Fri Dec 9, 2016, 06:23 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,358
During my wife's transplant, they told us that the measure of success isn't seeing improvements every day, but instead it's seeing more days of improvement than days that feel like setbacks. That idea helped us see the bigger picture of overall progress, even without consistent daily progress.

But I know that you can't help watching your counts with concern every time they are measured. That's just human nature.

Good luck in seeing more counts going up.
Reply With Quote
  #7  
Old Thu Dec 15, 2016, 10:10 AM
julieme julieme is offline
Member
 
Join Date: Dec 2016
Location: Monona
Posts: 13
hubby neutraphhils at 270

Hi,
Craig has been out of the hospital almost a week after haplo bmt for aml. His counts are not keeping up. Yesterday all counts were down again so he cot transfusions. Doctor said since the did chemo after to prevent rejection rebound is a bit slower but he is making some blood cells of each type and no "bad cells" on day 29 post bmt so is ok.

Has anyone else experienced this? have not asked dr pt blank if this is graft failure or normal. He was on growth factor in hospital. Does he need som other drug?
Reply With Quote
  #8  
Old Wed Dec 28, 2016, 11:15 AM
julieme julieme is offline
Member
 
Join Date: Dec 2016
Location: Monona
Posts: 13
Good news and questions

Neutraphils up to 1070 and no transfusions required

Mild rash on forearms treated with steroid cream. Dr says is drug reaction no GVD -how do they know?

Also polycrohomism and some tear drop rbc. Dr says his body is pumping out rbc as fast as it can now and Craig is anemic.Is there anything to be worried about Wikipedia says thes are also signs of marrow problems
Reply With Quote
  #9  
Old Wed Dec 28, 2016, 12:24 PM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
I had a rash on my arms and treated with steroid cream. My doctors thought mild GVHD. The rash would then come back on both knees then forearms then lower legs. The rash did not itch and was resolved fairly quickly with the cream. I went through a couple one lb. tubs of the cream. My other skin situation was itching of face and scalp. That was thought to be GVHD also. That was all I had from GVHD.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Haplo for AML with FLT3 AMLMomma Transplants 3 Tue Oct 6, 2015 02:04 PM
New here , husband has MDS Mac MDS 12 Sat Dec 21, 2013 11:53 AM
Husband needs spirits boosted!! Dre's Wife AA 3 Thu Dec 15, 2011 12:42 AM
How Does AA Progress to MDS? Greg H AA 10 Fri Sep 9, 2011 07:00 AM
Husband Diagnosed With Mds 6/30/2009 ann Tell Your Story 4 Sat Sep 5, 2009 03:09 AM


All times are GMT -4. The time now is 09:43 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2018 Marrowforums.org