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AA Aplastic anemia

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Old Wed Mar 20, 2013, 12:27 AM
Heather8773 Heather8773 is offline
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Location: Houston, TX
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Allergy meds?

Any recommendations on allergy meds?
A little more tricky picking one bc my husband is currently on 7 medications!
His Dr said Benadryl (great for night) or another older one my husband can't remember.
His Dr said the newer ones have an ingredient that is not good to take w cyclosporine.
Any advise?
Thx
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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Old Wed Mar 20, 2013, 02:11 AM
NLJabbari NLJabbari is offline
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Hi Heather! My son would do saline nasal flushes with a Nettie Pot. I also bought him Homeopathic Hay-fever tabs. They're all natural (Hyland's). This seemed to help him a lot.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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Old Wed Mar 20, 2013, 10:33 PM
Heather8773 Heather8773 is offline
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Thank you I have a nettie pot but he is a little intimidated by it lol, I think it works amazingly.
I'll try picking up the tablets thank you!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #4  
Old Wed Mar 20, 2013, 11:04 PM
Hopeful Hopeful is offline
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Hi - I took Claritin with cyclosporine. I'm not sure if it would interact with the other drugs that your husband is taking.
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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Old Wed Mar 20, 2013, 11:16 PM
Heather8773 Heather8773 is offline
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Location: Houston, TX
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Update I just showed him your post about your son using the Nettie pot and he decided to try it!
I think bc he had never seen or heard of one before last week he was skeptical.
Hopeful, thanks for sharing I wonder if it is a specific type of Claritin (like D?) but his Dr said no Claritin, Zyrtec,... Bc it would mess w cyclosporine levels? I saw on the warnings it was hard on kidney and liver so maybe bc the cyclo already is...
I will find out this Monday and fill yall in
Thx!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #6  
Old Thu Mar 21, 2013, 11:53 AM
Hopeful Hopeful is offline
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Hi Heather,

I took the non-drowsy Claritin, with the active ingredient loratadine. It is not listed as interacting with cyclosporine. However, as you pointed out, it is another burden on the liver and kidneys.
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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