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#1
Sun Apr 19, 2009, 08:33 PM
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MDS in IRELAND, Europe
I would love to talk with anybody in Ireland who has MDS. Perhaps we might be able to help each other.
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RARS dx 1993; RBC transfusions every 2-3 weeks; Erythropoeitin tried x2 - no change; Ferritin 3500 - Exjade 1500 daily; Just completed 5 cycles Vidaza - no change 
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#2
Mon Apr 20, 2009, 03:04 PM
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I know how hard it can be to find other patients with a rare disease.
Might your treatment center, doctor, or a hospital be able to connect you with other MDS patients?
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