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  #26  
Old Sun Apr 3, 2016, 11:49 PM
magsoh19 magsoh19 is offline
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Yay that is so awesome to hear. I am so happy for you, and I hope I get the same results. I honestly think I will since I feel great

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Originally Posted by MalteseMom View Post
Magsoh19 -- Good news... I had my appointment and they said that my bone marrow is normal. They want to recheck my bloodwork in 3 months and again in 6 months with follow-up with the doctor. I pray you have the same result!

I think I understand a "little bit" more about all of this but it seems very complicated and fluid. I am grateful that I have been checked out and that my doctor wants to continue to monitor me.

I am checking every day to see if you have gotten your results, too.


This is a very knowledgeable and supportive group.

Terre
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  #27  
Old Mon Apr 4, 2016, 09:16 PM
magsoh19 magsoh19 is offline
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My results came in and everything came back normal!!! They are sending out for more testing since my numbers have dropped a little more, but I'm not worried anymore!!
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  #28  
Old Mon Apr 4, 2016, 10:16 PM
MalteseMom MalteseMom is offline
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Quote:
Originally Posted by magsoh19 View Post
My results came in and everything came back normal!!! They are sending out for more testing since my numbers have dropped a little more, but I'm not worried anymore!!

Excellent news -- I am so happy for you, too! What additional tests are they running? Just curious!

Terre
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  #29  
Old Fri Apr 15, 2016, 08:16 PM
magsoh19 magsoh19 is offline
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So my marrow came back normal but my WBC and Neutrophils dropped slightly more. I just went the other day to be tested for every virus under the sun, Lupus, RA, PNH, and then a few others that I had never heard of nor could I find much out about them, and also another flow test. I go back the 22nd for the results of all of those. Which I am sure with come back negative or normal. I will keep everyone updated.
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  #30  
Old Sat Apr 16, 2016, 01:26 AM
KatailS KatailS is offline
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Quote:
Originally Posted by magsoh19 View Post
So my marrow came back normal but my WBC and Neutrophils dropped slightly more. I just went the other day to be tested for every virus under the sun, Lupus, RA, PNH, and then a few others that I had never heard of nor could I find much out about them, and also another flow test. I go back the 22nd for the results of all of those. Which I am sure with come back negative or normal. I will keep everyone updated.
So glad to hear your marrow is normal and hoping all the other tests come back normal too. Let us know what you find out
__________________
Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months
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  #31  
Old Fri Apr 22, 2016, 04:51 PM
magsoh19 magsoh19 is offline
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I went in today for more test results. I cam back negative or normal for everything she ran including lupus, HIV, Hep, PNH, but I did actually have numbers for Mono or Epstein Barr virus. I have no idea how to interpret these numbers. Does anyone else know? I mean couldn't I have had this for years and I don't see how it is affecting my WBC for this long.
EBV ab VCA igg(lc) 188
EBV ab VCA igm(lc) <36
EBV Earky anitgen ab igg <9.0
EBV nuclear antigen ab, I 154.0
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  #32  
Old Fri Apr 22, 2016, 08:33 PM
Wanderer Wanderer is offline
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Quote:
Originally Posted by magsoh19 View Post
I went in today for more test results. I cam back negative or normal for everything she ran including lupus, HIV, Hep, PNH, but I did actually have numbers for Mono or Epstein Barr virus. I have no idea how to interpret these numbers. Does anyone else know? I mean couldn't I have had this for years and I don't see how it is affecting my WBC for this long.

I believe most (maybe even 90%) of US folk have antibodies for the EB virus, so it doesn't really mean much either way --- it just means that you were infected with the virus at some time (possibly without any symptoms), and your immune system generated antibodies to it.
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