Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Jan 29, 2012, 01:57 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 919
One-day Patient Conference in Newark, NJ, July 28, 2012

A free one-day patient conference will be held in Newark, NJ on Saturday, July 28, 2012. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of seven one-day patient conferences in 2012.

This will be a multi-track conference for AA, MDS, and PNH patients and their families. Those who live on the East Coast should plan to attend this conference or the March conference in Bethesda, MD.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
  • Dr. Gail Roboz, Cornell University
  • Dr. Azra Raza, Columbia University
  • Dr. Danielle Townsley, National Institutes of Health
  • Dr. Ellen Friedman, Montefiore Einstein Center for Cancer Care
  • Dr. Adrianna Vlachos, Cohen Children's Medical Center of New York
  • Dr. Ramon Tiu, Cleveland Clinic
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
Special programs included:
  • Standing Up for Your Health (lunchtime program)
  • Celebration of Hope (concluding program)
For Kids Only

This special full-day workshop, which is being held at only one patient conference this year, is for children ages 6 to 16 who have a a bone marrow failure disease or who have a family member with a bone marrow failure disease. It's a mix of fun, art, and medical information, and a chance to make friends.

Living with Aplastic Anemia, MDS or PNH

When:
Saturday, July 28, 2012, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Renaissance Newark Airport Hotel (Google map)
1000 Spring Street, Elizabeth, NJ 07201
908-436-4600 (main), 866-234-7535 (toll-free), 888-236-2427 (Marriott toll-free reservations)

Discounted hotel rates are available if you make reservations by Wednesday, July 4, 2012.
Hotel self-parking is available but is not free.
See other hotel information AA&MDSIF event page.
Registration:
Use the online registration form to register for the conference.
The registration deadline is Wednesday, July 18.

For more information see the AA&MDSIF event page.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
One-day Patient Conference in Minneapolis, Minnesota, July 22, 2017 Marrowforums News and Events 1 Sat Mar 4, 2017 09:24 PM
One-day Patient Conference in Newark, New Jersey, September 16, 2017 Marrowforums News and Events 0 Sat Jan 28, 2017 12:43 AM
One-day Patient Conference in Raleigh, North Carolina, July 16, 2016 Marrowforums News and Events 2 Tue Jun 21, 2016 11:30 AM
AA&MDSIF 2010 Patient & Family Conference Marrowforums News and Events 18 Mon Jul 19, 2010 10:47 AM
AA&MDSIF 2008 Patient & Family Conference Marrowforums News and Events 3 Fri Jul 25, 2008 11:28 PM


All times are GMT -4. The time now is 06:02 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org