Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Sep 7, 2014, 07:44 PM
Data Data is offline
Member
 
Join Date: Sep 2014
Location: Florida
Posts: 245
Question TRICARE or Veterans' Hospital

I was curious to know if anyone has been on TRICARE Prime and been treated with Immunosuppressive Therapy (IST) or been treated in a VA hospital. I was looking at some of the costs for Antithymocyte globulin (ATG) and just about didn't need treatment do to sudden cardiac arrest. So far I have been treated under TRICAR but there hasn't been any major expenses. Just a little worried about the future. Thanks for any information anyone is willing to share.
Reply With Quote
  #2  
Old Fri Sep 12, 2014, 09:33 PM
ussoccer004 ussoccer004 is offline
Member
 
Join Date: Feb 2014
Location: Orlando, FL
Posts: 21
DO NOT USE THE VA!!!!!! I have use the Orlando VA with Dr. Vishnubhotla and she claimed to have requested my records from the National Institutes of Health in 2011 come 2014 I went to the hospital due to what appeared blood in the urine and miserable organ pain I mean liver hurting, spleen, everything. I get out of Florida hospital and they figured out at 8 year misery in 2 days that I have had PNH all along and finally was on the tail end of dying in the hospital with Pneumonia.

Needless to say 1-2 days before me admitting myself to the hospital Dr. Vishnu dismissed me with the mere flu and prescribed antibiotics!!!! This is the healthcare we signed our lives away for.

I found out she never requested the medical records from the NIH because if she would've she would've seen that the NIH diagnosed PNH through flow cytometry and bone marrow biopsy. They requested that my doctor also do proper follow up to confirm. Did she? NO. I went 8 years suffering and needless doses of prednisone when in 2011 I could have been put on soliris to combat the PNH. Please my brother, only use the VA for medications.

I will also email you something also.
__________________
Diagnosed PNH 2014/ Autoimmune AA 2006 treated with prednisone/ Hemoglobin 10.1; ANC .55; Platelets 150K
Reply With Quote
  #3  
Old Sat Sep 13, 2014, 07:36 AM
Data Data is offline
Member
 
Join Date: Sep 2014
Location: Florida
Posts: 245
Roger that. Good advice!!! Thanks!!!
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
Reply With Quote
  #4  
Old Sat Sep 13, 2014, 01:44 PM
rar rar is offline
Member
 
Join Date: Mar 2014
Location: colorado
Posts: 215
I went to the VA with MDS RAEB II. I was told that the waiting list for transplants was so long that I would be dead before I could receive one. This encounter never showed up on my healthy vet record. I had the transplant done privately with some expensive drugs required. One that my insurance did not cover was on the VA formulary and the VA supplied it.

Get VA care with your eyes wide open.

Ray
Reply With Quote
  #5  
Old Sat Sep 13, 2014, 10:18 PM
curlygirl curlygirl is offline
Member
 
Join Date: Jun 2013
Posts: 151
Tricare
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Research Study Seeking Vietnam War-Era Veterans with MDS Marrowforums MDS 5 Mon Mar 27, 2017 03:27 PM
Veterans Appeals Decision Search Results SASSI07855 Insurance, Finances, Disability, Veterans Benefits 0 Sun Aug 9, 2015 11:27 AM
Who can I get to Stay with my sister near the Hospital? alicat4790 MDS 3 Sat Oct 4, 2008 03:00 PM
After hospital treatment paulaespada AA 4 Fri Aug 15, 2008 05:13 PM


All times are GMT -4. The time now is 09:01 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org