Home         Forums  

Go Back   Marrowforums > Community > Living with Illness
Register FAQ Search Today's Posts Mark Forums Read

Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Nov 24, 2010, 02:23 PM
tytd tytd is offline
Member
 
Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
Frontline

I saw an interesting, (albeit, somewhat depressing) documentary last night, entitled "Facing Death". You can view it by visiting www.pbs.org and clicking on the "Frontline" tab. I found the written interview with Dr. Groopman reassuring that as an individual patient , you never know whether you may be on the "tail end of the curve" and beat the odds. He also comments on the unpopular decision to not approve Vidaza in the United Kingdom.
__________________
possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
Reply With Quote
  #2  
Old Wed Nov 24, 2010, 08:25 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
They called MDS a type of leukemia.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #3  
Old Wed Nov 24, 2010, 10:09 PM
Flamingo Jim Flamingo Jim is offline
Member
 
Join Date: Sep 2010
Location: Saint Louis, Missouri
Posts: 33
I thought it was a good show but maybe they exaggerated the toxicity of the whole Stem Cell Transplant process. How each patient reacts depends on their initial health, the progress of disease before transplant, age, and probably a host of other factors. The show made it sound like every person who gets a stem cell transplant will be taken all the way to near death before getting the actual transplant, with all sorts of complications to follow. For me, so far coming up on Day +60, it has been going to plan. I hardly had any complications before the transplant and none since. But the show was about end of life health care, so you would expect them to use the worse case scenarios.
__________________
Jim, MDS RAEB-1 with rare t(6;9)(q23;q34) translocation resulting in DEK-NUP214; dx August 2010 at age 45; SCT Sept 30, 2010 with male sibling match. Follow Progress at http://jimschmitz.wordpress.com/
Reply With Quote
  #4  
Old Thu Nov 25, 2010, 02:12 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Quote:
Originally Posted by triumphe64 View Post
They called MDS a type of leukemia.
MDS has sometimes been called pre-leukemia, both because for some patients MDS evolves to AML and because of similarities between the diseases. Calling MDS a "type" of leukemia is playing a little loose with the classifications but for the general public it's "close enough" to explain what type of disease it is.
Reply With Quote
  #5  
Old Fri Nov 26, 2010, 02:02 PM
tytd tytd is offline
Member
 
Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
SCT

Hello Jim, I am so glad that you and others have had such a good response to the SCT and I hope things continue to go well. As posted by Birgitta today, there have definitely been advances over the last decade in reducing complications from SCT. Your story and so many others on this forum are encouraging to those that may have to follow that path. The link for the abstract on SCT improvements is www.nejm.org or www.nejm.com., I think.
__________________
possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -4. The time now is 05:27 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org