Home         Forums  

Go Back   Marrowforums > Regional Discussions > Your Local Area
Register FAQ Search Today's Posts Mark Forums Read

Your Local Area Connect with people in your city, state, province, or region

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Oct 13, 2015, 06:05 PM
kmartino07 kmartino07 is offline
Member
 
Join Date: Sep 2015
Location: Farrell, PA USA
Posts: 26
Question Anybody From Pittsburgh?

Anybody here from the Pittsburgh area? Just recently moved to be closer to my family during this stage in my life. I'll be getting treated at West Penn hospital. I was curious about people's experience. If any....
__________________
Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far.
Reply With Quote
  #2  
Old Tue Mar 15, 2016, 01:37 PM
Yvonne Yvonne is offline
Member
 
Join Date: Mar 2014
Location: Douglassville, PA
Posts: 3
Smile Im here :)

Hi Kamara,

I don't know what all the initials in your post mean but I have Aplastic Anemia with PNH. I am near Reading ,PA. My thoughts are with you.

Yvonne
Reply With Quote
  #3  
Old Wed Mar 16, 2016, 11:45 AM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Kamara. I had a BMT for PNH 4 yrs ago. I had symptoms for a very long time before then, but I ignored them until I got to the point where my HGB was abt 7.4! I have some fairly mild GVHD, but it has been well managed by my doctor and associated medical staff. A lot of tests, a lot of meds and a lot of appointments, but both my doctor and I agree that my experience has been good, all things considered. Please let us know how you are doing.

Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
One-day Patient and Family Forum in Pittsburgh, Pennsylvania, April 18, 2015 Marrowforums News and Events 0 Mon Apr 6, 2015 04:50 PM
Anyone in Pittsburgh? kayakerSN Your Local Area 2 Tue Jan 27, 2015 12:11 PM
MDS survivors (Pittsburgh, Pennsylvania) Mike Conlon Your Local Area 1 Tue Jan 26, 2010 01:13 PM


All times are GMT -4. The time now is 04:23 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org