Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > PNH
Register FAQ Search Today's Posts Mark Forums Read

PNH Paroxysmal nocturnal hemoglobinuria

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu May 24, 2018, 11:11 AM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
No NORD PNH Meetings In 2018

I have been informed by a rarediseases.org representative that NORD is not hosting any PNH meetings in 2018. She did direct me to

http://www.aamds.org/education/conferences

Any new PNH patients out there? I don't remember if I posted this before, but I was informed last year that my donor was interested in communicating with me, but so far I have not heard anything from them. I will be sure to pass anything along if I ever do.

Hope all is well for those of us impacted by PNH



Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Has Anyone Attended Any Nord Pnh Meetings In 2016? GoodDay5150 PNH 4 Tue Sep 13, 2016 03:29 PM
NORD PNH Patient and Family Meetings in 2016 Marrowforums News and Events 1 Wed Sep 7, 2016 09:46 PM
NORD to Hold 18 PNH Patient and Family Meetings in 2015 Marrowforums News and Events 1 Sat Mar 7, 2015 01:37 AM
NORD to Hold Ten PNH Patient and Family Meetings in 2014 Marrowforums News and Events 5 Mon Sep 1, 2014 08:30 PM
NORD to Hold Six PNH Patient and Family Meetings in 2013 Marrowforums News and Events 0 Thu May 2, 2013 11:44 AM


All times are GMT -4. The time now is 05:37 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org