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D- Day for BMT on Valentines Day
Finally BMT day has arrived... I have been in the University Hospital of Leiden, the Netherlands for the past week, receiving heavy dosages of Chemo through a "subclavia catheter" under my collarbone, as well as oral dosages of chemo. Together with that I am taking heavy antibiotics in anticipation of my lowered immune system and steroids (prednison). So far so good. I handled the side effects of the chemo extremely well with very little discomfort,except for diarree and short bouts of nausea. I then received four days of ATG which went extremely well, considering how sick I was from the ATG last year... I am now in isolation awaiting the transplant later today. I am so unbelievably fortunate to have my sister as my donor. Liesel (my sister) donated her first round of stemcells yesterday during a 6 hour "marathon". Because she is a related donor and a very good match,I am not receiving radio therapy, therefore they apparantly need to draw another batch of stemcells from her today. So as soon as that is done, gone through the lab for prepration, I will receive the transplant later this afternoon...
I trust that this will go well and I am very positive and I am feeling strong and energetic. Ready for it all... After all, I don't think there is a better Valentine's gift than receiving a fighting chance to reclaim your life... So, with that positive note I am going into today filled with hope and faith that I will get through the next step coming out "fighting fit"... It is so great to be able to share one's feelings on this forum, specially as one can feel pretty isolated in a non English speaking country, facing a fairly serious procedure without being able to tap into a local English speaking support group. Thank you for this wonderful forum. I will keep you posted as to how it is going. In the meantime. I hope that you will all have a great valentines day, I know mine will turn out just great... Just remember, that a positive attitude is half the battle won...
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Nina, diagnosed MDS, failed ATG treatment, awaiting BMT in Feb 2007 |
#2
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Dear Nina,
It's so wonderful to hear from you at this special moment. Indeed you're getting the Valentine's Day gift of a lifetime. I think you have already survived the hardest part of the journey getting through the preconditioning chemo and ATG. Hold on to your positive attitude and you'll be home before you know it. Cheers to you and to your sister! Best regards, Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98 |
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hi nina,
i must echo the comments from ruth - it's great to hear from you on your "special day". thanks for sharing it with us your positive attitude reminds me of my son's on the day he received his BMT. for weeks prior, he had been so poorly, he wasn't even able to communicate with his identical twin brother (they were 10 years old). but he knew what was happening and that "D-Day" would be the day he would start to get better. even though he had been through so much - the ATG and chemo prior was very rough on him. but it was almost like he had mentally wiped the slate clean and was ready to face the real world again as a person without illness. when his brother handed over the bone marrow, he chatted away like there was nothing wrong - it was the first time since being ill, that he had communicated with his brother in such a warm and optimistic way all the best nina. i hope the road forward is a steady one without too many bumps. gina xxx |
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