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Thu Nov 20, 2014, 01:30 PM
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New website for the PNH Research and Support Foundation
The PNH Research and Support Foundation, which funds research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH), has moved its website from www.pnhfoundation.org to pnh.aamds.org, now sharing the aamds.org domain with its strategic partner the Aplastic Anemia & MDS International Foundation. They also share the AA&MDSIF's Peer Support Network.
In additional to funding research, the PNH Research and Support Foundation has provided needy PNH patients with funding for disease-related expenses not covered by insurance, including seeing a specialist. You can contact the PNH Research and Support Foundation at 888-582-9993 or info@pnhfoundation.org. 
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