Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Mar 26, 2018, 07:24 PM
JennyM JennyM is offline
Member
 
Join Date: Mar 2018
Location: Richmond, Virginia
Posts: 12
Question MDS my counts are dropping?

Just had my blood work done I've been off the neupogen since feb 29th
my wbc was 3.9 mar. 15th now 3.3, neu 2.3 now 1.3 was 70% no 38% plt was 155 now 132.
been really tired, and have a sore throat they want me to wait to take the neupogen until after my BMB April 16th.

My ANC going from 2.3 to 1.3 should I be concerned?
Reply With Quote
  #2  
Old Tue Mar 27, 2018, 12:01 AM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
I only have the injection if my neuts are less than 0.5...so it looks to me you still have wiggle room. Of course it all depends on how well the cells you do have function. I still think if you’re worried it’s best to ring your Doc and ask.
Reply With Quote
  #3  
Old Tue Mar 27, 2018, 12:24 AM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Jenny,

It is good that you are aware of your counts and how you are feeling. Changes in blood counts are normal from week to week and month to month. You mention a sore throat, which could be caused by an infection. WBC tends to go down with viral infections, even in healthy people, and go up in response to bacterial infections. Withholding neupogen prior to a bmb might be done in order to get more accurate results.

As Naive mentioned, it is pretty normal to not give neupogen unless neutrophils are less than 1.0 - although it may vary.

Best course of action is always to consult with your doctor about questions around treatment and progression.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 04:51 PM
Dropping counts, 4 years post-ATG Logain AA 16 Tue May 24, 2016 02:22 PM
counts dropping KathyM Transplants 1 Tue Jul 23, 2013 05:02 PM


All times are GMT -4. The time now is 05:02 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org