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Old Sat Jan 28, 2017, 01:30 AM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 896
One-day Patient Conference in Minneapolis, Minnesota, July 22, 2017

A free one-day patient conference will be held in Minneapolis, MN on Saturday, July 22, 2017. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2017.

The conference is for AA, MDS, and PNH patients and their families, for people who want information about the related diseases of AML, CMML, MPNs, PRCA, and GVHD, and for medical professionals who care for these patients.

The conference will include parallel (simultaneous) sessions on AA/PRCA, MDS/AML/CMML/MPNs, and PNH, as well as sessions on transplants, genetics, and wellness issues, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.

Conference Program

Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
  • Dr. Linda Burns, Be The Match
  • Dr. Michael Chicka, Prevention Genetics
  • Dr. David Dingli, Mayo Clinic Rochester
  • Dr. David Margolis, Medical College of Wisconsin
  • Dr. Erica Warlick, University of Minnesota
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions

AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH

Saturday, July 22, 2017, 8:30am to 3:30pm
Check-in begins at 8:00am.
Sheraton Bloomington Hotel (Google map)
5601 West 78th Street, Minneapolis, MN 55439
952-835-1900 (main)

Hotel reservations:
Discounted hotel rates are available through Tuesday, June 20, 2017.
Phone: 866-716-8134 or 952-835-1900 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations
Hotel parking is free. The hotel does not have an airport shuttle.
See other hotel information on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form to register for the conference.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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Old Sat Mar 4, 2017, 10:24 PM
Charo Charo is offline
Join Date: Feb 2016
Location: Wisconsin usa
Posts: 3
Thinking I will attend the conference in minneapolis

Hi, I am planning to attend the aa/mds conference in Minneapolis in July. It would be nice to meet others adjusting to this disease. Maybe we can set a time and place to have coffee?
Charo, age 62, diagnosed SAA 2015, ATG in Dec 2015. Eltrombopag in May 2016. Now in remission.
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