Home         Forums  

Go Back   Marrowforums > Community > Tell Your Story
Register FAQ Search Today's Posts Mark Forums Read

Tell Your Story Say hello or share your experiences

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Mar 1, 2010, 06:15 PM
Judy W Judy W is offline
Member
 
Join Date: Mar 2010
Location: Vancouver BC Canada
Posts: 2
Smile Iron Overload

I am a new member but have been following the forum for some time. I have a question today - my husband is tx dependent - he receives 2 blood and 1 platelet weekly - total 41 units of blood and 15 platelets - he has a very metallic taste in his mouth all the time and does not want to eat anything because of it - do any of you experience this? and would it be due to Iron Overload? his ferriten level is around 1800 which I don't think is really over the top after reading what some members are experiencing.
__________________
Judy, wife of Gerry age 76; diagnosed with MDS June 2009: RAEB-Intermediate 1; treated unsuccessfully with EPO; transfusion dependent; weekly blood and platelet tx; started Vidaza April 2010
Reply With Quote
  #2  
Old Mon Mar 1, 2010, 08:17 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Is it possible that his gums are bleeding a little bit? Not enough see but enough to taste it.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #3  
Old Mon Mar 1, 2010, 09:05 PM
Big Bruin Big Bruin is offline
Member
 
Join Date: Mar 2010
Posts: 5
"Back in the day" my nose was always raw - or somewhere just behind my nose towards my throat... And like Marlene suggests with the gums, the blood made a taste of metal in my mouth.
Reply With Quote
  #4  
Old Tue Mar 2, 2010, 12:24 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I forgot about the nose bleeds John would have from time to time. That too would cause the metallic taste.

Glad those days are over!!!
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
ASH Japanese Study on Iron Overload mesuring after allogeneic HSCT akita Transfusions and Iron Overload 0 Thu Dec 16, 2010 01:20 PM
ASH 2010 Highly Transfused MDS Patients Often Have Cardiac Iron Overload akita Transfusions and Iron Overload 0 Wed Dec 15, 2010 05:21 PM
ASH 2010 Iron Overload results in deficient Hematopoiesis akita Transfusions and Iron Overload 0 Sat Dec 11, 2010 04:43 PM
ASH 2010 Iron Overload Accelerates Development of Leukaemia - Mouse Model akita Transfusions and Iron Overload 0 Sat Dec 11, 2010 04:21 PM
Iron Overload, Liver and Heart Function Francine S Transfusions and Iron Overload 7 Mon Jun 1, 2009 01:01 PM


All times are GMT -4. The time now is 04:34 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org