Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Thread Tools Search this Thread
Old Sun May 3, 2009, 10:50 AM
JEZ JEZ is offline
Join Date: Apr 2009
Location: Birmingham, AL
Posts: 68
"Floaters" in the eyes


About 6 months before I was diagnosed, I was feeling bad but did not know what was wrong. At the same time I experienced a "flash" of light in an eye and a floater developed (gauzy floating appearance in the site). Since then, I have developed more and the optomotrists I have been to say it is due to age (50s). I wonder, however, if it is related to my aplastic anemia. Has anyone had this problem?

JEZ, 50s, diagnosed AA Dec 2006, ATG one time, serum sickness resolved / took cyclosporine (Neoral) with delayed response but now with good labs/ recent kidney toxicity, so off of cyclosporine now and trying generic Imuran
Reply With Quote
Old Sun May 3, 2009, 01:08 PM
rschem rschem is offline
Join Date: Mar 2009
Location: Creston,BC,Canada
Posts: 28

I have had floaters about 2 years ago , after about 3 months they went away.I have AA since Aug. I have been getting floaters perodicaly and I have been wondering if threy are caused or related to AA or the cyclosporne.
Reply With Quote
Old Sun May 3, 2009, 03:49 PM
Birgitta-A Birgitta-A is offline
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Floaters and flashes of light

You may have had posterior vitreous detachment that is quite common and has nothing to do with hematological diseases but if your platelet count is low you will bleed more when the vitreous is detached.
Kind regards
Reply With Quote
Old Sun May 3, 2009, 06:11 PM
Hopeful Hopeful is offline
Join Date: Jan 2009
Location: California, USA
Posts: 707

I sometimes get the bright flashes of light in my eye. It seems to be related to my cyclosporine dosage.
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
Reply With Quote
Old Thu Apr 19, 2012, 05:56 PM
dfantle dfantle is offline
Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
This is an old thread, however I started having floaters in February in one of my eyes which are different than the occasional ones I've had probably all my life I've seen my eye Dr and a retinal specialist and both say my eye is fine, but
if I start seeing flashes that could be signs of a potential retinal detachment.
My hematologist doesn't seem to know of any tie in to AA or any of the meds I'm on. Though I do know prednisone can cause some eye issues, this isn't one of the known ones.

To me it's been worse since my ATG treatment 3 weeks ago. I see a lot of tiny tiny round specs, to me they could look like cells. The eye drs said this is normal with aging and these just gather in a gel layer on the eye, but the timing to me is suspicious.

Would love some feedback from others on this.
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
Reply With Quote
Old Thu Apr 19, 2012, 11:03 PM
cathybee1 cathybee1 is offline
Join Date: Aug 2010
Location: Fort Jones, California
Posts: 399
Don't know how old you are, or what others on ATG might report, but my husband had very similar symptoms a few years ago. The eye doctor told him it was probably the vitreous humor detaching. In fact, after a few weeks the symptoms subsided -- something about the brain learning to shut out the "floaters."

But they were very clear that if the situation didn't improve, it was important to have it rechecked.

Found this article which describes the process and symptoms pretty well: http://www.tedmontgomery.com/the_eye/vitreous.html
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
Reply With Quote
Old Fri Apr 20, 2012, 12:51 AM
dfantle dfantle is offline
Join Date: Jan 2012
Location: bellevue, wa
Posts: 150

Thank you Cathy . I'm 53. The link you included was very helpful.

Fortunately I've not had any flashes, just more floaters than before. I think I will give it another week or so now that I'm almost off the prednisone I've been on the past 3 weeks. Then if there's no change, I'll go back and see the retinal specialist, or maybe find a different one.

Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great

Last edited by dfantle : Fri Apr 20, 2012 at 12:58 AM. Reason: edits
Reply With Quote
Old Sun May 27, 2012, 06:42 AM
glitterandlace glitterandlace is offline
Join Date: Oct 2011
Location: central, CA
Posts: 49
It's funny that if you look up on the internet the side effects of cylcosporin they give you a different list than the paper they give you at the doctors. If you google the side effects of cyclosporin one of the side effects of prolonged use of cyclosporin is glaucoma. The doctors never tell you that,,, as if it is not important. ??? Who knows their reasons.
My eyes were acting up big time while I was on cyclosporin.
But it is interesting about the floaters. They might just be a side effect of AA, because I seen the floaters for a while before I was diagnosed. I feel like I had AA from 1-2 years before it was diagnosed. I seen floaters a lot during that time too.
Reply With Quote
Old Wed Jun 6, 2012, 09:49 PM
Ellen McDonough Ellen McDonough is offline
Join Date: Sep 2011
Location: United States,Denver,Colorado
Posts: 43

I have noticed floaters as well ever since weaning down on my dose of Cyclosporin.I am 52 years old but hadn't noticed them before. I have hadSAA since 4/2009. Maybe aplastic anemia but also have had temporal area headaches and ringing in the ears since then too. Have had PET/CT scan and lots of blood work .No diagnosis as of yet.Was on Pred for a short time [6 weeks] but have been off of that for 8 weeks now.Kind of frustrating ! Aso have a new diagnosis of gastroparesis which has no apparent cause they have found yet either.Interestingly had flashes and double vision with the initial onset of the headache in March.Prednisone cleared that up totally .
Ellen McDonough--Denver,Colorado

[57 year old,diagnosed with Severe Aplastic Anemia 4/2009.
Reply With Quote
Old Thu Jun 7, 2012, 11:40 AM
donna j. donna j. is offline
Join Date: Sep 2011
Location: long island, new york
Posts: 110

After a serious rubbing of my eyes in November of 2010, before any signs of my MDS, I experienced the floaters and bright flashes in my eyes. I quickly made an appt with an eye dr as I was concerned about a detached retina. She informed me that as we age, the fluid behind the eyes begins to dry up and sometimes crack. The floaters never go away, only our brain overcompensates and we will not be bothered by them. She explained that a dr examining my eyes will see that they are still there, even if we no longer see them.
Shortly after my transplant my vision was very poor to the point I could not read. Since then, I have regained my vision and can read. I am due for a new prescription as it changed greatly after my Vidaza treatments in Sept - through Dec of 2011. My eyes were checked in Jan 2012 prior to my transplant. We decided to wait on a new prescription as my vision would probably change again after the transplant. I am scheduled for a new appt shortly.
Currently, I occasionally have a large floater, just float by, but I have noticed that when red blood counts are so low that I am due for a red blood transfusion (below 8 HMB), I get black stars flashing in my vision.

I too am experiencing gastroparesis. My dr. has long believed it may be slight GVHD. After reviewing on line my symptoms, I informed the dr.I have diagnosed it as gastroparesis. Bloating, no appetite, nothing moves quickly through my esophogus, or stomach, and frequently leaves my body in the same identifiable color, shape and form as it was eaten. No digestion has taken place. I am managing by being able, once again, to drink Ensure and try to puree all I eat. Bananas, canned pears. I have recently discovered that a boiling can of chicken broth with an equal amt of water added is a good base for me to add a couple of mixed raw eggs slowly to make a simple egg drop soup is helping to get some protein in my system. I have also read that Prednisone can cause digestive problems. I am down to 2.5 mg of Predinose every other day, and once off that, I will continue to
reduce Cyclosporine of which I currently take 130mg 2x a day. I plan to bring to the dr. a probiotic which I took daily before my diagnosis and see if she approves of it now in assisting digestion. Previously I took it for regularity.
All of the meds, chemo, and the transplant have got to have a serious effect on the good bacteria in the body which assists digestion!

Good luck

f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Failed Transplant/Relapse of MDS sandra4611 Transplants 4 Fri Mar 3, 2017 08:18 PM
may be Cgvhd, irritation in eyes sore throat Shikha tomar Tell Your Story 3 Fri Jul 1, 2016 09:02 PM
GVHD EYES, drugs no relief johnwc Transplants 11 Fri Dec 4, 2015 07:05 PM
MDS - Dry eyes? Cheryl C MDS 10 Sat Mar 22, 2014 10:43 PM
Does MDS or Aranesp effect your eyes? junglegirlsue MDS 3 Mon Nov 1, 2010 08:26 PM

All times are GMT -4. The time now is 03:53 PM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2019 Marrowforums.org