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  #1  
Old Thu Oct 23, 2014, 09:23 AM
MamaS MamaS is offline
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Join Date: Oct 2014
Location: Bristol C.T
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Smile New member

Hi my name is Veronica, I am so happy to find this forum. I found out I have MDS in September 2014... Of course I knew nothing of this or even heard of it! And I had B/C twice this had small spot in my throat.. All good outcome.. But now I face what I do not even understand .. I try to keep optimistic and even a sence of humer where this is not funny!!! Start soon cycle 2 of chemo , I have pro with my dr on pain management!! I had a back injury and pain is worst and other pain and health problems wow just got neutropenia and landed in hospital
I could go on and on but you all may have been through some of the same... Thank you!!! I did surport
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Veronica Soto age 62 Diagnosed Sept 2014 Treatment chemo :confused. I am going through problems with understanding my high risk MDS....
Stem cell transplant is not a opp for me because my health is poor
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  #2  
Old Thu Oct 23, 2014, 02:37 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Neutropenia - low neutrophils

Hi Veronica!
Good that you try to keep optimistic and seek info !

You have probably received info about low WBC when you started chemo (Vidaza?). Here is very good info - I try to live as I am neutropenic since neutropenic fever 2007. Don´t forget to control your temp every day! http://hopecancerclinic.net/yahoo_si...f.21921853.pdf
Kind regards
Birgitta-A
75 yo dx MDS Interm-1 2006. supportive treatment until 2010. Thalidomide with positive response 2010-2013. Now taking Revlimid but my response is decreasing.
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  #3  
Old Thu Oct 23, 2014, 03:45 PM
johnwc johnwc is offline
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Join Date: Dec 2013
Location: PORTLAND
Posts: 42
MamaS
You will find so much information on this forum. I think we all have had to go through the learning curve about Leukemia. Keep educating yourself, and ask you docs to explain what's happening in your body, and use this form for support and more clarification.

Blessings,
John in Portland, Oregon
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John, 68, Portland, Or. Dx with CMML on 12/1/2013, 3 days before admission for SCT, blasts went to 23%, AML. Did 7+3 chemo regimen. The chemo worked and blasts are 1% and did BMT on 1/1/15.- 12/2/15, ongoing GVHD in eyes. Lung fungus and Bronchiolitis Obliterans (BO).
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