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Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

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  #1  
Old Fri Feb 17, 2012, 09:16 PM
amberb amberb is offline
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Location: Jacksonville Beach, FL
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Starting Neupogen, any info?

My Dr is going to start me on Neupogen injections next week to boost my white count since it has continued to drop these last few weeks. Does anyone have any experience with this drug? I'm nervous about the side effect of bone pain. I started out real tough, but over these past months of treatment and not feeling well, I'm turning into a baby!
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Amber, age 24, diagnosed w/ SAA and treated w/ horse ATG 7/11, rabbit ATG 1/12, on cyclosporine. Started Desferal infusion for iron overload 7/12.
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  #2  
Old Sat Feb 18, 2012, 07:21 AM
Birgitta-A Birgitta-A is offline
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Location: Stockholm, Sweden
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Neupogen

Hi Amberb,
Not every patient gets bone pain from Neupogen. I have taken that drug during more than 4 years - when I once had to take Neupogen daily during 9 days I got bone pain.

Hope you will have a positive effect and no adverse reactions!
Kind regards
Birgitta-A
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  #3  
Old Sat Feb 18, 2012, 08:01 PM
dfantle dfantle is offline
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Hi, I've been having GCSF ( nupogen) injections regularly for 8 months and really haven't experienced any pain or other side effects. Even though I now give myself the injections every other day. It's different for everyone.

Good luck.
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great

Last edited by dfantle : Sat Feb 18, 2012 at 09:07 PM. Reason: Typo
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  #4  
Old Mon May 6, 2013, 11:30 AM
franko franko is offline
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Neupogen as an AA treatment in general and for lung candida in particualr

Hi.

My mother is hospitalized with AA for 2 weeks now, and also developed a lung candida infection.

Is it recommended/common to use Neupogen ( or other g-csf) for the treatment of AA in general and lung candida in particular? (she is now treated only with voriconazole against her lung infection. is that enough?).

or is Neupogen only recommended as an MDS treatment?

The doctor says most studies shows its not recommended. is that true?
i read the opposite on the internet.

Thank you very much!
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  #5  
Old Mon May 6, 2013, 05:32 PM
Marlene Marlene is offline
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It depends on what her anc count is. If it's below 500 then it could be helpful.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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  #6  
Old Tue May 7, 2013, 09:07 AM
ssdavi71416 ssdavi71416 is offline
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Location: Atlanta Georgia
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For me it was a dull pain for a little while after the injection. Not that bad in comparison to other parts of AA treatment. Not as bad as an IV needle insertion.
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Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
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  #7  
Old Tue May 7, 2013, 04:57 PM
NLJabbari NLJabbari is offline
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Location: San Jose, California
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Hello Franco,

If your mother does not have enough WBC's/high enough ANC (at least 500) to fight this infection in her lungs--Personally, I would certainly try to get a boost from Neupogen.

Sometimes you have to make decisions based on the lesser of two evils...

As far as Neupogen being an MDS drug--no, it is not specific for MDS. It is a drug that boosts your White Cell production. Sometimes it is given to Bone Marrow Donors to produce extra cells for donation.

When my son was on it for about 4-6 weeks. He said the only thing he felt different was that his calves felt a little heavy.

Hope your mom feels better soon and that she can beat this candida out of her lungs!
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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  #8  
Old Sun May 19, 2013, 05:12 PM
CordeliaChase CordeliaChase is offline
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Location: Phoenix, Arizona
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Smile neupogen injections

I started taking them every 14 days about 4 months ago and I had problems. About 12-15 hours after I injected myself I would start to feel like i was coming down with the flu-achy, even more tired than usual, and feverish, then the dull awful ache in my back, legs and hips would start-and last for about 2 days. It has gotten better, I feel "funky" and "achy" for about a day after my injection and it passes.
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Carlotta, mom of 3, (26,23,&19);diagnosed with AA in May 2009, treated with ATG X2 and continue on Cyclosporine and Prednisone, watching and waiting.
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  #9  
Old Fri May 24, 2013, 09:06 AM
MDSPerth MDSPerth is offline
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Amber, my partner injected with neupogen twice weekly for eight months prior to transplant. He was also using EPO at the same time. Both these injections managed to keep him a symptomatic and healthy and raised his WBC, neutrophils and HGb from a dangerous level into the healthy range in the lead up to a MUD.

Regards Sandi
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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