Home         Forums  

Go Back   Marrowforums > Regional Discussions > Your Local Area
Register FAQ Search Today's Posts Mark Forums Read

Your Local Area Connect with people in your city, state, province, or region

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Apr 14, 2015, 07:16 PM
dsandrock91 dsandrock91 is offline
Member
 
Join Date: Apr 2015
Location: Columbus, Ohio
Posts: 9
Any one in Columbus Ohio with AA

I was recently diagnosed with AA and looking for others with it and how they cope with it and live a "normal" life. Since getting diagnosed I am in a constant state of worry and feel like I have stopped living to my fullest because I am so scared of dying or my numbers getting so low that I will get severlly sick and end up in the hospital. If any one is in my area would like to meet up with you and hear your story and be of some support to you. Since I know since getting diagnosed have felt alone and like no one understands what it feel like to live in a constant state of worry over you blood cell levels. I just want to let you know that you are not alone and that someone feel the same way you do.
__________________
Dalesa, 23 yrs old, diagnosed AA 2014, currently no treatment method being used.
Reply With Quote
  #2  
Old Wed Apr 15, 2015, 10:53 AM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Any of you in Ohio should seriously consider this conference for AA,MDS,PNH, and PRCA.

https://friendraising.donorpro.com/campaigns/101
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #3  
Old Wed Apr 15, 2015, 08:59 PM
KMac KMac is offline
Member
 
Join Date: Oct 2012
Location: Golden, Colorado
Posts: 103
Hi Triumphe64,

Congratulations on your wonderful rise in Hgb to 16.3. Very glad to see that for you!
__________________
Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
Reply With Quote
  #4  
Old Tue Jun 9, 2015, 11:21 PM
summerdrake summerdrake is offline
Member
 
Join Date: Dec 2013
Location: United States
Posts: 18
Hi!! I had my treatments done at OSU in the James Cancer Hospital. Is that where you are?
__________________
Summer, 32; diagnosed with SAA May 2013; BMT June 7, 2013; off meds, no signs of GVHD; doing great, praise the Lord!
Reply With Quote
  #5  
Old Thu Jun 11, 2015, 11:11 AM
dsandrock91 dsandrock91 is offline
Member
 
Join Date: Apr 2015
Location: Columbus, Ohio
Posts: 9
Yes I go to James

Yes I go to the James. I will meet with a bone marrow transplant specialist soon to see if that is something to consider. But since not all my levels are dropping, and just recently my red started to drop they think the IV treatment may be a better option for me right now.
__________________
Dalesa, 23 yrs old, diagnosed AA 2014, currently no treatment method being used.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
AA from Epilepsy Drugs? bchenaille AA 16 Wed Dec 28, 2011 07:20 AM
How Does AA Progress to MDS? Greg H AA 10 Fri Sep 9, 2011 06:00 AM
Searching for AA Patients in Vancouver, WA John AA 8 Fri Aug 20, 2010 03:45 PM
Newbie Story / "not typical" AA presentation Deanna16 Tell Your Story 4 Fri Feb 12, 2010 09:18 AM
My experience with AA Hawaii Bill Tell Your Story 5 Fri Jun 13, 2008 02:31 AM


All times are GMT -4. The time now is 04:49 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org