Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Apr 7, 2018, 09:55 PM
cdseibold cdseibold is offline
Member
 
Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
MDS and Breast cancer

It is well recognized that breast cancer treatments can be a factor in getting MDS. I am on watch and wait for MDS. This month I was diagnosed with a new breast cancer😂 in the same breast I had cancer 20 years ago.
My oncologist is telling me that I cannot have a second radiation due to previous treatment. He also says that chemo is not an option since I have MDS.
Anyone heard to this challenge.

To further complicate the situation I have no further lymph nodes to help predict whether cancer has spread.

Thoughts?
__________________
Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
Reply With Quote
  #2  
Old Sun Apr 8, 2018, 01:28 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Carol,

Given your combination of health conditions, would you consider getting a second opinion from a doctor who is experienced with MDS? For example, you might consider going to Fairview Hospital at the University of Minnesota in Minneapolis or the Mayo Clinic in Rochester.
__________________
Founder of Marrowforums and caregiver for my wife
Reply With Quote
  #3  
Old Mon Apr 9, 2018, 05:52 PM
cdseibold cdseibold is offline
Member
 
Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Talking Good advise

I have used Mayo for second opinion when initially diagnosed. UnMN does a lot of stem cell transfers. They have been doing surveys on MDS patients for a number of years. So either would be good for 2nd opinions. So excellent advise.

I meet with my hematologist here on the 18th. Glad I went with the mastectomy as they found a second tumor in the breast tissue.

Thanks for your input.

Carol
__________________
Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS following prior cancer chemo donna j. MDS 1 Wed Sep 12, 2012 09:29 PM
Breast Cancer and MDS Suzanne MDS 5 Tue Jun 12, 2012 03:46 PM
Silicone Breast Implants link to MDS? Jill2008 MDS 7 Fri Aug 8, 2008 11:03 AM


All times are GMT -4. The time now is 05:38 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org