Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Sep 17, 2018, 12:05 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
New Shingles Vaccine

My transplant dr just gave me a prescription for the newer shingles vaccine. Probably a good idea for all of us transplants! Shingles are no fun... I had them a few years ago. Supposedly the newer vaccine is much more effective than the older vaccine is/ was. Still no new PNH patients here as far as I can tell?

Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
  #2  
Old Tue Sep 18, 2018, 05:32 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Mario - if it's live shingles vaccine then normally marrow disease patients can't have it, so best to check before you go ahead.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #3  
Old Tue Sep 18, 2018, 01:28 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Be sure to check out the cost. The cost can vary pretty dramatically. You may be able to find a less expensive price outside of your insurance plan. Drug stores, wallmart, cosco ,etc may have a better price than doctor offices or clinics covered by your insurance.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #4  
Old Wed Sep 19, 2018, 09:01 AM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
My doctor also highly recommended the new shingles vaccine. It is very effective and is not a live virus There are no known contra-indications with cyclosporine for the immune suppressed.

I didn't even think about the insurance implications, as the flu shot is always covered. Thanks for the tip, Marlene.
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
  #5  
Old Wed Sep 19, 2018, 10:14 AM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
My dad discovered that with the newer pneumonia vax. He paid more for his at the clinic while his wife's was $200 less at the drugstore. This can also be true for other medicines as well. Apparently, negotiated prices with insurance companies are not always the cheapest and people are finding better prices for some drugs by shopping around.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #6  
Old Wed Sep 19, 2018, 12:22 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
The large chain drugstore that I go to has to call me when they get more of the vaccine. Yes, the costs can vary. My dr's office did not have the vaccine, otherwise they wld have done it for free, that being included w/ my co-pay for the appt. I don't think that I have ever been billed extra by my dr's office for any shots, vaccinations, immunizations, etc. I have heard diff things abt getting all of these vaccinations, flu shots etc. but I trust the advice of medical doctors more than that of conspiracy theorists.

Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
  #7  
Old Thu Sep 20, 2018, 01:44 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Great news that this new vaccine is not a live virus. I had shingles two and a half years ago and it was absolutely miserable. Can you tell me what it's called so I can ask about it here in Australia. Thanks Mario.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #8  
Old Thu Sep 20, 2018, 11:59 AM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Cheryl. It is called SHINGREX. My transplant dr had shingles on her face!! Yeah, there are pretty harsh but mine cleared up pretty fast w/ acyclovir. Australia looks pretty fun. I wld like to go there sometime. A pretty long flight from the US. Here is the new WEBMD link.



Mario

https://www.webmd.com/skin-problems-...u-need-to-know
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Many questions Aplastic Anemia used to scuba dive AA 9 Sat Sep 22, 2007 03:30 PM


All times are GMT -4. The time now is 04:27 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org