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Old Sat Jan 17, 2015, 11:59 AM
inky100 inky100 is offline
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Join Date: Jan 2015
Location: Kentucky
Posts: 1
New To Forum

Hello all,

I just found this forum and quickly joined. Just a little about myself, I was diagnosed with Multiple Myeloma in 2005, and have had two auto stem cell transplants: 2006 & 2012. As a result of all the chemo, I was diagnosed in Sept. 2014 with tMDS. I just completed my first round of Vidaza injections last Friday, and to be honest, my stomach and thighs look like a battle field -they feel like it too.

Anyway, I'm happy to have found this forum. I'm looking forward to learning from all of you.

Have a wonderful day!
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Old Sat Jan 17, 2015, 02:06 PM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Thank you for posting. Vidaza can be a different experience for everyone. I am sorry that it is a struggle for you. I feel confident that Vidaza saved/extended my life. With me, I thought the Vidaza shots looked worse than they felt. I took all seven in my stomach and it wasn't a problem that a couple of Tylenol didn't fix. I never lost any sleep or anything and often golfed the same day as the shots. I did notice that by about the fourth day of the cycle I was slowed down a little. The part that I had to be very aware was the constipation that was caused by the anti-nausea pills that I took an hour before the shots.

Good luck and welcome to the forum. There are many here with great advice and hope. Let us know about your progress and experience.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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