Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Nov 20, 2014, 12:30 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 920
New website for the PNH Research and Support Foundation

The PNH Research and Support Foundation, which funds research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH), has moved its website from www.pnhfoundation.org to pnh.aamds.org, now sharing the aamds.org domain with its strategic partner the Aplastic Anemia & MDS International Foundation. They also share the AA&MDSIF's Peer Support Network.

In additional to funding research, the PNH Research and Support Foundation has provided needy PNH patients with funding for disease-related expenses not covered by insurance, including seeing a specialist.

You can contact the PNH Research and Support Foundation at 888-582-9993 or info@pnhfoundation.org.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Raise awareness on MDS and support research to help our loved ones affected Wife of Diver Down MDS 3 Tue Mar 1, 2016 02:34 PM
8th Annual Walk for PNH in New York, September 22, 2013 Marrowforums News and Events 0 Sat Aug 10, 2013 12:16 PM
NORD to Hold Six PNH Patient and Family Meetings in 2013 Marrowforums News and Events 0 Thu May 2, 2013 11:44 AM
Fourth Annual Walk for PNH in New York City Marrowforums News and Events 0 Fri Oct 2, 2009 12:32 AM


All times are GMT -4. The time now is 09:21 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org