Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Mar 3, 2015, 01:38 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Pnh Walk For 2015?

So is there an annual walk for PNH this year? I was just wondering.

Thanks

Mario
Reply With Quote
  #2  
Old Tue Mar 3, 2015, 02:51 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
I expect that they'll announce the Walk for PNH date in the coming months, but I haven't seen anything so far.

The 2014 Walk for PNH was Sunday, September 21, 2014 and raised over $35,000.
Reply With Quote
  #3  
Old Wed Mar 4, 2015, 12:53 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Neil, thanks for the quick reply. I know that you're an active participant here and with AA/MDS.ORG activities. Myself and other bone marrow failure patients appreciate your involvement. I had a BMT 3 yrs ago for PNH, so I know all about the dr's appts, meds, bone marrow biopsies, etc etc.!!! And of course, the time involved in the care of such patients.

Mario
Reply With Quote
  #4  
Old Wed Mar 4, 2015, 03:55 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Mario,

We appreciate your involvement too. We've read your posts about the long time it took to diagnose you before your transplant, and we thank you for giving advice to other PNH patients and family members in the forums, as you've done regularly since you joined.

Have you traveled to New York for the PNH Walk, or would you plan to?
Reply With Quote
  #5  
Old Wed Mar 4, 2015, 04:18 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Neil. I was actually diagnosed quickly. I simply ignored my symptoms for a very long time until they got so severe that I ddnt have a choice. I would consider attending a PNH walk anwhere in the US. I did attend the PNH conference in Denver last June. That was my only official gathering that I have attended so far.
Reply With Quote
  #6  
Old Fri Jul 24, 2015, 12:15 AM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 919
The Walk for PNH 2015 has been announced.

It will take place Sunday, September 20, 2015 at Riverside Park in New York and registration is open.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Walk for PNH: September 17, 2017 Neil Cuadra News and Events 1 Mon Oct 16, 2017 06:47 PM
Tenth Annual Walk for PNH: September 20, 2015 Marrowforums News and Events 1 Thu Sep 3, 2015 04:52 PM
Ninth Annual Walk for PNH: September 21, 2014 Marrowforums News and Events 0 Sat Aug 2, 2014 03:30 PM
8th Annual Walk for PNH in New York, September 22, 2013 Marrowforums News and Events 0 Sat Aug 10, 2013 12:16 PM
Fourth Annual Walk for PNH in New York City Marrowforums News and Events 0 Fri Oct 2, 2009 12:32 AM


All times are GMT -4. The time now is 06:39 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org