| Home Forums |
|
|||||||
| Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ... |
 |
|
|
Thread Tools | Search this Thread |
|
#1
Thu Aug 13, 2015, 11:33 PM
|
|||
|
|||
|
exjade
im looking to talk about exjade and its ups and downs i have just been put on it and wonder hoe others are going on it?? Aussie danielle
|
|
#2
Sat Aug 15, 2015, 07:07 PM
|
|||
|
|||
|
My Exjade "relationship..."
Hey there downunder - As we say in this wonderful forum, YMMV and we all seem to have different reactions to the treatments available.
I've kept a detailed record of CBCs including serum ferritin and creatinine levels because one of the Exjade side-effects for me is rising creatinine levels which is bad for kidney function. My doc has agreed that if I can keep ferritin around 1000 it's OK to suspend Exjade for three weeks, retest and see if creatinine has dropped to a lower value. I've done this from time-to-time and have gotten the results hoped for. There are other side effects, but they are manageable for me. Good luck and I hope you have good coverage. This Novartis drug is EXPENSIVE !!! 
__________________
Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
|
|
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Exjade info needed | cheri | Transfusions and Iron Overload | 40 | Wed Feb 24, 2016 09:53 AM |
| Exjade and counts | Birgitta-A | Drugs and Drug Treatments | 0 | Fri Feb 27, 2009 06:09 AM |
| Exjade! I need help from other Blue Cross members! | Wendy Beltrami | Insurance, Finances, Disability, Veterans Benefits | 6 | Thu Oct 23, 2008 12:02 PM |
| Exjade and zinc levels | Marlene | Transfusions and Iron Overload | 0 | Mon Mar 24, 2008 03:20 PM |
| New Exjade warning | Marlene | Transfusions and Iron Overload | 3 | Wed Jan 30, 2008 01:21 PM |
