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  #26  
Old Tue Jan 22, 2013, 08:19 PM
JodyW JodyW is offline
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Phil,
I am hoping things are OK. Haven't seen a post in a few days so was wondering how the back pain is and if you got it under control. Will be praying for you.
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  #27  
Old Mon Jan 28, 2013, 03:08 PM
Momhope Momhope is offline
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Hello Phil,
how you doing, hope to heard soon from you .hope everything is well.
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  #28  
Old Wed Mar 13, 2013, 10:21 AM
dpmeeks dpmeeks is offline
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Sorry I haven't posted in forever.... I made it thru the transplant and got out around the 23rd of Jan. I was home two days and got C-Diff in my stomach and was readmitted for about 5 days to treat.
Its now march 13th, ive still been having stomach issues, but, its getting a lil better. Ive been home since early Feb. and ive been doing good and feeling better each day. I pray everyone is doing well !
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Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
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  #29  
Old Wed Mar 13, 2013, 04:29 PM
Neil Cuadra Neil Cuadra is offline
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Thanks for the update, Phil. Keep feeling better every day!

Is the back pain gone?
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  #30  
Old Wed Mar 13, 2013, 10:19 PM
Momhope Momhope is offline
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happy for you

so, good to know from you, thanks god you are doing better..was littler worry ..why was yhe back pain?
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  #31  
Old Fri Mar 15, 2013, 10:26 AM
dpmeeks dpmeeks is offline
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They never told me why the back pain,i guess because of the spine puncture.

I'm about day 70 days post transplant,, has anyone had issues with weight loss ? I keep losing weight, I've lost over 40 lbs., and it keeps dropping, I've been dealing with stomach issues which my doctor knows about and its trying to treat. The issues are soft stool and going to the bathroom atleast twice a day. The doc doesn't think its gvhd..
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Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
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  #32  
Old Fri Mar 15, 2013, 07:12 PM
LoveRapheal1 LoveRapheal1 is offline
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I hope your transplant turns out well. I will pray over you. I will also be on the forum if you want to speak. I truly believe you will be ok. Try to read some inspiring stories or messages of hip.
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  #33  
Old Fri Mar 15, 2013, 07:20 PM
LoveRapheal1 LoveRapheal1 is offline
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DPMeeks

Excuse me my err. I see that you have received the transplant. I read somewhere that a bit of gvhd means that it is working but still I font know. Either thank god you're alive and I wonder if your counts have stabilized. I would ref. ask for an xray of your spine and consult a doctor. Good luck.
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  #34  
Old Sat Mar 16, 2013, 10:22 PM
Lori Patrick Lori Patrick is offline
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70 days post transplant -- YAY! As far as weight, I gained weight. I am still on steroids and have fought to lose 12 of the 40 I gained. You sound good and like you are taking it all in stride. As for the gvhd, I developed it after the 100 day mark, making it chronic gvhd. BUT I'm alive and enjoying my family - just require more resting and caution around people. Hang in there!
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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  #35  
Old Thu Apr 25, 2013, 04:45 PM
dpmeeks dpmeeks is offline
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another update ... im like day 116 post SCT now, got my day 100 BMB results this past Monday and it showed no leukemia cells .

I haven't had any issues so far except thrush I cant seem to get rid of and my stomach is still grumpy. My doc thinks its mainly due to all the meds. It seems as though ever since I had c-diff my stomach has never been the same.

I pray everyone is doing well !!
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Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
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  #36  
Old Thu Apr 25, 2013, 05:41 PM
4bcsboys 4bcsboys is offline
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Hope shared

Phil,
Thanks for sharing your milestone. You give me hope! Prayer for continued improvements in health.
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Wife and mother of three young boys, diagnosed at age 39 with AA 2007; treated with ATG and cyclosporine; progressed to MDS end of 2012; MUD on June 26, 2013.
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  #37  
Old Fri Apr 26, 2013, 01:57 AM
SLB SLB is offline
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Excellent news Phil. So glad to hear! I am day +50 today.. halfway to the magic +100!! Hope it all continues positively for you!
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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  #38  
Old Sat Apr 27, 2013, 09:43 AM
dpmeeks dpmeeks is offline
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4bcsboys and SLB.. thank you for the kind words ! Im sure they will find a match, im African American and they originally told me I had a 20% chance for a match and God provided me with 3 10/10 matches so dont worry ! Put your faith in him..

50+ post transplant is great It can be a struggle but take your time and itll be here before you know it. Thankfully the days have gone by without much issues, im trying to figure out my upset stomach issues but other than that ive been blessed. thank you God for watching over me...
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Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
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