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AA Aplastic anemia

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  #1  
Old Sun Mar 24, 2013, 01:48 PM
Heather8773 Heather8773 is offline
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Location: Houston, TX
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How to heal a sore in mouth?

Hi my husband accidentally bit inside his cheek and bc it swelled a little bit it again.
Any tips to help it heal? Low immune system is taking awhile to heal and I don't want it to become infected
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #2  
Old Sun Mar 24, 2013, 01:58 PM
Marlene Marlene is offline
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Try using warm salt water a mouth rinse 3 or 4 times a day. It's hard not to keep re-biting it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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  #3  
Old Sun Mar 24, 2013, 03:49 PM
ssdavi71416 ssdavi71416 is offline
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Ask your doctor about "magic" mouthwash. They should be able to call in to your pharmasist. They have different solutions that are named magic mouthwash but the hematologist probably has one that they prefer and/or is most appropriate.
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Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
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  #4  
Old Tue Mar 26, 2013, 05:25 AM
Cheryl C Cheryl C is offline
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Pure (unheated, untreated) honey is very soothing and healing for mouth ulcers. Pure organic coconut oil is also excellent (see http://www.coconutresearchcenter.org...%20pulling.htm).

Hope this helps!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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Old Tue Mar 26, 2013, 11:09 PM
Heather8773 Heather8773 is offline
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Thx y'all! Great tips! Truly appreciated!
Cheryl interesting about the organic coconut oil! I actually just bought some for my hair and skin lol (winter has dried them out!) Its unopened so we'll give it a try thx for the link!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #6  
Old Tue Apr 2, 2013, 07:48 AM
Cheryl C Cheryl C is offline
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Glad to be of help - please let me know how you got on. I use coconut oil on my skin too - it's easier to apply if you moisten your hands and skin first.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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  #7  
Old Fri Apr 19, 2013, 07:14 AM
glitterandlace glitterandlace is offline
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Honey....
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  #8  
Old Fri May 3, 2013, 03:25 AM
dfantle dfantle is offline
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No raw honey

Hi, as it looks like your husband is still on Immunosuppression medications, he should not have any raw or untreated honey. This is definitely on the Do Not Eat list because of a small chance of botulism ( same reasons infants can't have raw honey)

Saline rinses, as mentioned before are good to do. Coconut milk is also soothing for mouth discomfort.

Best, Dena
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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