Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Jan 2, 2015, 10:08 AM
mausmish mausmish is offline
Member
 
Join Date: Mar 2010
Location: Maryland
Posts: 453
Four years post BMT

Greetings all,

It's been awhile. Just wanted to report the good news that my 4 year checkup and bone marrow biopsy were all great. I have some issues with skin and eye GVHD but am doing very well otherwise. There are more detailed updates on my blog, http://mausmarrow.com, but all in all life is good!

Happy New Year!
Karen
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote
  #2  
Old Fri Jan 2, 2015, 12:10 PM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
It had been quite a while since we have seen an update from you Karen. This is great news. Congratulations on 4 years!
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
  #3  
Old Fri Jan 2, 2015, 01:56 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Karen,

I'm glad you're doing well and past yet another milestone.

I hope your eye condition will improve now that you're off steroid drops. My wife had to try a few types of eyedrops (prescription and over the counter) before finding what worked for her, but of course every case is different. Her eye problems were the results of the radiation she received, not GVHD.
Reply With Quote
  #4  
Old Fri Jan 2, 2015, 03:58 PM
mausmish mausmish is offline
Member
 
Join Date: Mar 2010
Location: Maryland
Posts: 453
Thanks, Neil! I've run the gamut of eye ointments and drops, both OTC and prescription, including special compounds, but I have high hopes for the scleral lenses.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote
  #5  
Old Sat Jan 3, 2015, 04:30 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Yay! Well done, Karen. That's great news.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #6  
Old Thu Feb 5, 2015, 12:36 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Congrats Karen. I am 3 yrs post trans for PNH. I have similar GVHD issues which are slowly improving. I had a MUD which I was told was the absolute best poss match that I could have. We all hope that you continue to do well.

Mario
Reply With Quote
  #7  
Old Thu Feb 5, 2015, 07:08 PM
vickij vickij is offline
Member
 
Join Date: Apr 2013
Location: Connersville, Indiana
Posts: 117
Karen

Great news. Do you have a BMB every year ? I have a problem with dry eyes & dry mouth.
__________________
62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
Reply With Quote
  #8  
Old Fri Feb 6, 2015, 02:25 PM
mausmish mausmish is offline
Member
 
Join Date: Mar 2010
Location: Maryland
Posts: 453
Johns Hopkins does BMBs every year for the first 5 post transplant.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Platelets low post BMT for my son Shannon D AA 5 Wed Jan 6, 2016 01:07 PM
Does Canada or Australia allow post BMT patient(more than 2 years) as a immigrant dhruba_bd AA 4 Thu Aug 22, 2013 12:45 AM
ITP four years post BMT for AA evansmom Transplants 0 Mon Jul 30, 2012 01:47 PM
?WHY?- low platelets STILL > 1 yr post BMT MGirl Transplants 2 Sun Mar 25, 2012 12:46 AM
BMT Relapse after 10 years Mary D. Questions and Answers 4 Sun Dec 30, 2007 10:03 PM


All times are GMT -4. The time now is 11:55 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org