Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Nov 15, 2012, 08:55 PM
MDSPerth MDSPerth is offline
Member
 
Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
Cramps

Question from Paul - He seems to be suffering a lot of very painful cramps lately. Wonders if it might be related to his MDS or something completely unrelated. Does anyone else experience cramps?
__________________
Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
Reply With Quote
  #2  
Old Thu Nov 15, 2012, 10:38 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
He may want to have his magnesium level checked. Low magnesium will cause painful cramps.
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
  #3  
Old Thu Nov 15, 2012, 10:59 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
I get cramps from cyclosporine. The doctor tells me to take magnesium oxide to help it. Check with yours. Mine tells me to take all I can. Magnesium is a laxative, so you will learn your limits from experience.

The brand name MagOx was $14 a bottle at my local Walgreens the last time I checked. I am able to buy a generic version at the Cleveland Clinic pharmacy for under $3 a bottle. So it pays to shop around.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #4  
Old Fri Nov 16, 2012, 02:03 AM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
In a word, yes, but in spells. Potassium, magnesium, and hydration seem to be the best weapons. I would check with Paul's doctor about any of them as they all have downstream impacts. I tend to run low on potassium and notice that when I eat salty foods that i really suffer as potassium is depleted by sodium - they work in an opposite direction by pushing each other out of your body.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
  #5  
Old Fri Nov 16, 2012, 07:24 AM
Lulu Lulu is offline
Member
 
Join Date: Nov 2011
Location: UK
Posts: 49
cramps

I used to get very bad cramps before I started on a nutritional program. Caffeine and alcohol would make them worse, but I think they were caused by excess sweating brought about by being anaemic and overexerting myself.

What helped most was this stuff http://new.eletewater.com (I'm not trying to sell it!). Magnesium also helps some people - the Citrate format is supposed to be better tolerated and more effective. I use magnesium oil which you rub onto your skin and is particularly good if you suffer from restless legs.

Go for a test if you can, as deficiencies/imbalances of all the electrolytes (calcium, magnesium, potassium, sodium) can cause cramps.
Reply With Quote
  #6  
Old Fri Nov 16, 2012, 11:39 AM
Lbrown Lbrown is offline
Member
 
Join Date: Oct 2009
Posts: 361
Bathing in Epsom salts is another good way to get some magnesium.

Deb
Reply With Quote
  #7  
Old Fri Nov 16, 2012, 07:23 PM
Lori Patrick Lori Patrick is offline
Member
 
Join Date: Oct 2010
Location: Indianapolis, Indiana
Posts: 166
I had horrific cramps under my ribs. My doc put me on Mag64 - 2 in the a.m. and 1 at night. I take another otc mag tablet at night as well. No more cramps!
__________________
Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
Reply With Quote
  #8  
Old Fri Nov 30, 2012, 08:17 PM
Lisa Z Lisa Z is offline
Member
 
Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
cramps

Lori- That's good to know . I may try it. I get cramps all over,including my ribs..... I have read that PNH can cause cramping, so since I have MDS and PNH, I attribute it to the PNH,as no doctor has been able to figure out the cause. I just live with it...
__________________
Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
cramps Faye R MDS 4 Fri Aug 14, 2015 08:05 AM
Pancytopenia and Leg Cramps? David M Questions and Answers 8 Tue Apr 24, 2012 02:16 PM


All times are GMT -4. The time now is 02:46 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org