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#1
Tue May 14, 2013, 09:38 PM
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low, intermediate & high RISK?
Just wondering what these terms actually mean. What is the RISK that is talked about? The RISK of death, or RISK of life threatening complication, or RISK of transforming into leukemia?
Just wondering...
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections. 
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#2
Wed May 15, 2013, 06:06 AM
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hello juliana,
I think that with the stratification risk, the doctors can evaluate your risk of transformation in leukemia. In the table of ipps-R (pronostic indice revisited), you can find the overall rate survival (time that correspond of the death oh the half of the patient) and the time to progress into leukemia (time for 25% of the patient develop leukemia).... Can anyone that confirmed of not :-)? Don't forget, there are STATISTICS, everyone is different.. Those tables are also based on "non treatment other than supportative care" I think. You can also find correction with age (you can that seen in the IPPS-R). I hope that help. Kind regards béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
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#3
Thu May 16, 2013, 04:13 AM
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Thank you. I guess with this disease there is SO MUCH that is unknown. There are lots of risks involved with it. You are right, who really knows what the future holds. Dr's can guess, but it's up to us I suppose, how to live in the fight & always being positive!
Hang in there people! xo
__________________
Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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