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PNH Paroxysmal nocturnal hemoglobinuria

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Old Wed Apr 16, 2014, 10:06 PM
ussoccer004 ussoccer004 is offline
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Symptoms before treatment

I was wondering how some of you who are taking soliris feel the day before your treatment? Do you feel run down or tired, nausea, headaches? I am on my 5th treatment going on 6th this week 04/16/2014
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Old Sun Apr 27, 2014, 10:50 PM
Shana Shana is offline
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Hi there,

My doctor is putting me on Soliris this Thursday. So far the symptoms of PNH have been mostly fatigue, being unconcentrated, unmotivated and the like.
I can tell you what happens after the Soliris...

God bless!
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