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#1
Sat Sep 17, 2011, 05:39 AM
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249 Days!!! Woo Hoo
I am at 249 days after transplant! I have a minor case of gvh of the skin and my liver was getting all worked up for a while! Other than requiring a couple of naps each day, I am doing great. Was on 40 mg of prednisone (yuck - swollen water retention pockets everywhere!!!) but am weaned down to 10 mg per day.
Those of you who are new, there is hope. This disease and the treatment of the disease is a "process". Blessings to all of you. Lori
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#2
Mon Sep 19, 2011, 01:23 AM
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Congratulations, Lori. Happy to hear you're continuing to do so well!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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