| Home Forums |
|
#1
Fri Mar 30, 2012, 08:58 AM
|
|||
|
|||
|
NY Times article about MDS/AML
I don't know how many of you saw the piece in yesterday's NY Times (3/29/12) "Well" column in the Health section, titled "Life, Interrupted: Facing Cancer in Your 20's", by a young woman, Suleika Jaouad. She has recently been diagnosed with MDS which has transformed to AML. The Times will be running a weekly column by her in "Well" called "Life, Interrupted". Definitely worth reading and following.
Marmab
__________________
Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD. 
|
|
#2
Fri Mar 30, 2012, 11:33 AM
|
|||
|
|||
|
Linnk for above ^^
__________________
Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
|
|
#3
Fri Mar 30, 2012, 12:35 PM
|
|||
|
|||
|
Suleika's blog is well written too. To follow her blog from the beginning, start with Good Afternoon, You Have Cancer.
|
|
#4
Sat Apr 14, 2012, 11:13 AM
|
|||
|
|||
|
NY Times Patient Journal
http://well.blogs.nytimes.com/tag/suleika-jaouad/
Suleika Jaouad had MDS but by the time she was diagnosed her MDS had already progressed to AML. She has been writing about her treatment and preparation for her stem cell transplant. It's a very good journal. She also has a blog of her own. I recommend it highly. http://secretsofcancerhood.com
__________________
25F, Dx RCMD MDS 1/2012, on wait and watch for who knows how long
|
|
#5
Thu May 3, 2012, 06:31 AM
|
|||
|
|||
|
I follow Suleika on twitter and I thought you all might be pleased to hear that she was released from hospital post-transplant yesterday.
 I know as well as anyone that the journey isn't even halfway over now, but it's great that she's made it past the first hurdle and can recover from home now.
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
|
 |
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| ny times article By MIKKAEL A. SEKERES | tom30 | News and Events | 7 | Thu Apr 2, 2015 09:38 AM |
| Gene Sequencing - Great NYTimes Article | Greg H | Drugs and Drug Treatments | 4 | Sat Jul 14, 2012 08:27 PM |
| Good article on palliative care | Neil Cuadra | General Health Issues | 0 | Fri Dec 24, 2010 02:43 PM |
| Good article - sideroblastic anemia | Marlene | Bone Marrow Failure | 0 | Fri Nov 21, 2008 11:11 AM |
