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AA Aplastic anemia

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Old Tue Feb 20, 2018, 02:32 PM
rukalukavina rukalukavina is offline
Join Date: Mar 2011
Location: Novi Sad, Serbia
Posts: 12
Klebsiella pneumonae in mouth and tongue sores

Hello fellow warriors!

So, I been having this nasty infection in my mouth for almost a year now and I really don't know what to do with it anymore.
I turn to this community in hopes that maybe somebody can turn me in the right direction.

I had my round of ATG in December 2015, recovery took about a half a year. To this day I've been on and off with strong antibiotics so I'm assuming my gut flora is destroyed. Last year in June I've noticed mouth ulcers on tongue and inside cheeks.
I've tried a combination of chlorhexidine digluconate which were helpful in the beginning until this became chronic, diagnosed by my dentist which also gave me all kinds of medicines for mouth wash and treatment of sores. She also took a culture and it turns out I have Klebsiella pneumonae in these ulcers. I've read in various articles that this is a superbacteria which can cause pneumonia.

My question is: Did anyone had this and managed to get rid of it with any medicine, be it natural or chemical?

Any help is appreciated.
Diagnosed with AA in 2006; on CyA 2006-2014; treated with rATG in 2009; relapse in march 2011, high dose CyA + tapering - success (all values normal); low values in 2015; discontinued CyA, rATG+CyA December 2015; Working full time as of June 2016: CyA tapper to this day.
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Old Tue Feb 20, 2018, 03:45 PM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 587
I had sepsis with klebsiella p and was treated with cefepime successfully.
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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Old Thu Mar 21, 2019, 08:05 PM
MelbourneAA MelbourneAA is offline
Join Date: Mar 2019
Location: Melbourne Victoria Australia
Posts: 3
Salt water may be of benefit.

Maybe try gargling with salt water several times each day.
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Old Sat Mar 23, 2019, 02:48 AM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
If you can get Manuka honey you may find that soothing and healing.
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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