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Old Mon Feb 7, 2011, 12:39 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 908
One-day Patient Conference in Cleveland, June 11, 2011

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is holding six one-day patient conferences in 2011.

One of these conferences will be held Saturday, June 11 in Cleveland, Ohio. It's a multi-track conference for AA, MDS, and PNH patients and their families.

The conference will include parallel (simultaneous) sessions on topics related to AA, MDS, and PNH, as well as sessions to help you live with and cope with these diseases.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
  • Dr. Monica Bessler, University of Pennsylvania School of Medicine
  • Dr. Edward Copelan, Cleveland Clinic
  • Dr. Jaroslaw Maciejewski, Cleveland Clinic
  • Dr. Michael Parsons, Cleveland Clinic
  • Dr. Isabel Schuermeyer, Cleveland Clinic
  • Dr. Mikkael A. Sekeres, Cleveland Clinic
  • Dr. Ramon Tiu, Cleveland Clinic
Patients and family members will also be able to
  • meet these medical experts face-to-face
  • learn skills for managing life with a bone marrow failure disease: coping with illness and fatigue, nutrition and exercise, etc.
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
Special programs included:
  • Standing Up for Your Health (lunchtime program)
  • Veterans & Bone Marrow Failure Diseases: a discussion and workshop especially important to Vietnam veterans
  • Survivors Celebration (concluding program)
Living with Aplastic Anemia, MDS or PNH

Saturday, June 11, 2011, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Cleveland Airport Marriott (see Google map)
4277 W. 150th Street, Cleveland, OH 44135

Hotel self-parking is free.

Discounted hotel rates are available if you make reservations by Thursday, May 19, 2011.
See "Conference Hotel & Directions" on the AA&MDSIF event page.
Use the online registration form to register for the conference.
The registration deadline is Wednesday, May 4.

For more information see the AA&MDSIF event page.
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Old Wed May 25, 2011, 07:56 AM
edithr edithr is offline
Join Date: Feb 2011
Location: 30 mi West of Cleveland
Posts: 86
I'm signed up to go, I just wondered if anybody else here is too? If so, are you interested in introducing yourself at the conference? I would love to be able to talk to someone who is going through the same thing. The boards are helpful, but there is nothing like a conversation.
Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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