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Alternative Treatments Complementary and alternative medicine; natural and holistic approaches

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Old Thu Mar 10, 2016, 05:16 PM
Faye R Faye R is offline
Join Date: Feb 2013
Location: New Zealand
Posts: 60
Alternative MDS treatment

Hi Vidaza stopped working for me now I'm on a hunt for alternative treatment man there is some crazy stuff out there. Has any one heard of or tried Fucoidan it is some kind of seaweed
DX RCMD 2011 Azacitidine discontinued Dec 2015 with less than 10% blasts
Transfusions now every two to three weeks
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Old Tue Mar 15, 2016, 03:10 PM
Juan Juan is offline
Join Date: Dec 2015
Location: Spain
Posts: 12
Sorry to hear vidaza stopped working for you Faye, I dont know about Fucoidan but there is a thread here about alternative treatments where maybe you will be able to find something. Please let us know what you find and how you are feeling.
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Old Sun May 8, 2016, 06:57 AM
Lulu Lulu is offline
Join Date: Nov 2011
Location: UK
Posts: 49

I have heard of Fucoidan, sometimes called Limu juice

Sounds promising, but (as with a lot of herbal supplements), check the dosage as often the pills sold online are very low dose compared to what were used in clinical trials, and may offer placebo effect only. Good luck!
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