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PNH Paroxysmal nocturnal hemoglobinuria

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Old Tue Sep 25, 2018, 10:41 AM
Leigh Clark Leigh Clark is offline
AAMDSIF Patient Educator
Join Date: Jun 2007
Posts: 22
PNH Panel

AAMDSIF is helping with a project and putting together a patient panel to discuss PNH. Patient panel will consist of 8-10 PNH patients currently being treated with Soliris and patients who are NOT being treated with Soliris. Meeting will take place in November in NY. Transportation and accommodations will be covered as needed and participants receive a stipend for participating If you are interested in participating or have any questions, please contact Desiree Ruiters, 800-747-2820 x105 or email ruiters@aamds.org.
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