Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Mar 20, 2013, 08:54 AM
babs babs is offline
Member
 
Join Date: Mar 2013
Location: Palm Beach County, FL
Posts: 8
Moffitt or Mayo Jacksonville for transplant?

I have recently been referred for a transplant and live in S. Florida. Both Moffitt and Mayo Jacksonville are several hours away by car but are my best choices. Does anyone have personal experiences they would be willing to share - positive or negative? I really appreciate it as I need to decide SOON.

Thanks!
Reply With Quote
  #2  
Old Wed Mar 20, 2013, 12:23 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
babs,

You can use the National Marrow Donor Program's transplant statistics to get an idea of their transplant statistics across all diseases:
H. Lee Moffitt Cancer Center & Research Institute

Mayo Clinic Florida/Mayo Hospital
Reply With Quote
  #3  
Old Wed Mar 20, 2013, 07:54 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
I have personal experience with Mayo Jacksonville. My Dr. is Dr. Foran. I would recommend them for a transplant. I can not say it was easy but everyone on the third floor was a cheerleader that wanted me to get better. Everyone there is very nice and goes out of their way to make you get better and make it easier for you.

I will tell you this though make sure to pack some snacks to take with you because the food leaves a lot to be desired..

If you have any specific questions message me or ask here and I will answer...
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #4  
Old Wed Mar 20, 2013, 07:55 PM
Dick S Dick S is offline
Member
 
Join Date: Jan 2008
Location: Florida
Posts: 189
For the sake of relatives and family, you're closer to Moffitt by about one hour each way. Of course I-95 is easier traveling for you and them.
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
Reply With Quote
  #5  
Old Thu Mar 21, 2013, 02:53 PM
babs babs is offline
Member
 
Join Date: Mar 2013
Location: Palm Beach County, FL
Posts: 8
Thanks for the responses. Since I will have to travel and stay in the area either way, I want to go to the treatment center that will give the best shot at a good outcome. That is my only goal.

Has anyone stayed at a transplant house (or something like that) at either facility? Or know what's available?

Cam, do you live in Jacksonville?

Thanks so much,
B
Reply With Quote
  #6  
Old Thu Mar 21, 2013, 02:55 PM
babs babs is offline
Member
 
Join Date: Mar 2013
Location: Palm Beach County, FL
Posts: 8
Quote:
Originally Posted by Dick S View Post
For the sake of relatives and family, you're closer to Moffitt by about one hour each way. Of course I-95 is easier traveling for you and them.
Dick,

I have family traveling from Mobile, AL so Jacksonville is a little closer for them. Basically a wash on the travel for the two.

Did you go to Moffitt or know anything about it?

Thanks,
B
Reply With Quote
  #7  
Old Thu Mar 21, 2013, 08:02 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
B,

I live in Yulee Florida which is a 30 minute drive from Mayo. If you have any question about the area just ask. If I do not know I will ask my wife she grew up in Jacksonville.

I can ot say enough about Mayo. It is a premeire hospital for a reason and has some top notch Doctors... And the staff is just as great...

Cam
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #8  
Old Fri Mar 22, 2013, 10:39 AM
babs babs is offline
Member
 
Join Date: Mar 2013
Location: Palm Beach County, FL
Posts: 8
Cool

Quote:
Originally Posted by Cam View Post
B,

I live in Yulee Florida which is a 30 minute drive from Mayo. If you have any question about the area just ask. If I do not know I will ask my wife she grew up in Jacksonville.

I can ot say enough about Mayo. It is a premeire hospital for a reason and has some top notch Doctors... And the staff is just as great...

Cam
I'm awfully jealous of people who live so very close to world-class treatment centers!
Reply With Quote
  #9  
Old Fri Mar 22, 2013, 08:55 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
Babs,

Every step of the way has been a gift from God... The first Dr. that diagnosed me come to find out wrote the book on Bone Marrow disorders (he is now retired and works in Fernandina one day a week near me). I live near Mayo, and they found a non familial donor that was a 10/10 match and same blood type. And I was lucky enough to get Dr. Foran and the Mayo team to get me through this... Tell him Cam said hi...


Cam
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #10  
Old Mon Mar 25, 2013, 11:48 PM
babs babs is offline
Member
 
Join Date: Mar 2013
Location: Palm Beach County, FL
Posts: 8
Quote:
Originally Posted by Cam View Post
Babs,

Every step of the way has been a gift from God... The first Dr. that diagnosed me come to find out wrote the book on Bone Marrow disorders (he is now retired and works in Fernandina one day a week near me). I live near Mayo, and they found a non familial donor that was a 10/10 match and same blood type. And I was lucky enough to get Dr. Foran and the Mayo team to get me through this... Tell him Cam said hi...


Cam
Cam,

You are right to look at the blessings of the journey! Good for you! Will convey your message to Foran on Friday.

Best, B
Reply With Quote
  #11  
Old Sat Mar 30, 2013, 05:45 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
What did you think? What BMT nurse did you get?

Cam
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #12  
Old Mon Apr 1, 2013, 12:54 AM
Laura Laura is offline
Member
 
Join Date: Aug 2006
Location: Minnesota
Posts: 433
I am glad you found Mayo-J to be great. I had my BMT at Mayo-Rochester and I would never recommend anyone to ever get their transplant there. I would tell them to run fast and far away.
__________________
Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
Reply With Quote
  #13  
Old Tue Apr 9, 2013, 12:54 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
I have had Jack and Virgina. They both take care of you. They have used Virginia to ambush me and talk me back in the hospital on both occasions... What kind of BMT are they talking about for you?

Cam
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Moffitt Cancer Center in Tampa, FL Data MDS 5 Fri Jun 12, 2015 03:39 PM
Second month Moffitt visit Al's Wife MDS 1 Fri Aug 10, 2012 05:45 PM
Anyone had ATG at Moffitt? scully Drugs and Drug Treatments 5 Fri Aug 10, 2012 08:44 AM
FINALLY have appointment at Moffitt Al's Wife MDS 6 Mon Jul 2, 2012 05:29 PM
Mayo Clinic Rochester MN---MDS 5Q-spray Your Local Area 7 Sat Feb 6, 2010 05:29 PM


All times are GMT -4. The time now is 04:59 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org